Reducing Steroids

[Sailormo]

Hi Ivebeen trying to reduce my prednisalone for some time,I was 20mg I'm down to 13 mg but suffering badly with pain I thighs neck and shoulders and feeling really unwell, I've also been taking azathioprine which Ive had to stop due to raised liver function. I've lost abit of interest in helping myself I've always tried to be positive and try anything but its reareally hard going just now. I have pmr I've had it for about five years now,any help would've great I'm sti ll seeing my Rheumatologist.

[DorsetLady PMRGCAuk volunteer]

You posted similar a day of two ago - and got a few replies -see this -

healthunlocked.com/pmrgcauk...

[Koalajane in reply to DorsetLady]

it was this morning!

[DorsetLady PMRGCAuk volunteer in reply to Koalajane]

🤦🏻‍♀️ Was it? Obviously been a long day…..🤣😂

[PMRpro Ambassador]

Some people need more for longer. I have been at above 15mg for the last 3 years - stress and my form of PMR to blame. I've had symptoms for 18 years now, been on pred for 13 years. But it doesn't usually stop me doing things, I comfort myself with the thought there are far worse things to have.

You need to look at how you are living - are you trying to do too much? Is your diet poor? Are you under a lot of stress? All sorts of things have an effect and all together that can be considerable.

But self-help has a lot of effect - not least to make you feel happier when you feel a bit better.