update from Monday

[gardener96]

After another call to the rheumatology nurses, I had no option but to go to A& E. 17 hours later I had been diagnosed as having a flare and ESR level raised from when it was taken last Friday. Back up to 30 mg of pred and already feel much better, but more importantly a slow taper now. I would like to thank the community for your support and guidance.

[PMRpro Ambassador]

Good outcome despite the wait! I did warn you to take a good book! Maybe it should have been a sleeping bag

Hope it all settles down now. I do wish they wouldn't go into the tapering lark like the proverbial bulls in china shops - it isn't fair on the patients.

[DorsetLady PMRGCAuk volunteer]

Good, but shouldn’t have been given run around by Rheumy nurse initially.

Glad to hear on more sensible taper - fingers crossed it works you,, and it’s taken on board by said nurse..

[Charlie1boy]

Hi,

Glad to hear you’re feeling better. What a lot of pfaff to get there. Just proves the value of a slow taper.

Best wishes

Paddy

[Viveka]

Good you're feeling better. How did you manage to get two blood tests so quickly btw? Also I think it would be worth querying with your consultant why you couldn't be advised by another rheumy when they were absent, rather than the A&E route. You are under their care after all.

[gardener96 in reply to Viveka]

I agree and certainly will ask that question. One blood test was routine and the second one was in A & E.

[Viveka]

Ah, thanks.