I was diagnosed 6 months ago. Started on 15mgs prednisolone. Currently on 20mgs. I have remained positive until recently. My main daily battle is fatigue, both my calfs ache/throb so much, and my head is so full of wool it's hard to concentrate. I have a medication review with the pharmacist next week and I know he'll want me to reduce. My main question is it the prednisolone causing the aches or do I need to increase. I know it's a question for the medics but just thought I'd ask here first. I'm finding it really difficult to drag my legs around. Thank you for reading.
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Magsteru2
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As your profile provides no details, ie date diagnosed, started on pred how much, what on now etc. If you are unsure how to fill in your profile, just click on my avatar or any other and it will help you to see what I mean.
In the meantime although this question will seem a little strange to you, your answer will probably help us to answer your question. PMR is not a life threatening illness, it means you have to make changes to accommodate this auto-immune illness as currently there is no known cause or cure. We have to learn to 'manage' it.
So are you trying to live the life you lived before PMR and Pred?
Lots of people complain about concrete legs - perhaps the PMR and your expectations being too high.
Do you really mean you have gone UP from 15 to 20mg? After 6 months on 20mg you really do need to be trying to get to a lower dose. Without knowing much more than you have told us so far there isn't a lot we can suggest but the fatigue is part of the disease and is something that must be managed by pacing and resting - and often changes in lifestyle. It is hard - but realistic. Brain fog can be due to the disease or to the pred, especially at higher doses and for the really unlucky it can be both.
Being on pred isn't a signal to go back to your normal pre-PMR life - it is to manage the symptoms to allow a better quality of life in the meantime.
Tell us more about the calf pain - is it all the time? Does anything make it worse? Is it OK when resting but starts when you walk more than a certain distance?
What does your doctor say? Keeping you on 15/20mg for six months seems strange. Have they suggested you try and taper down? What country do you live in?
I had cramps in my legs but when I got my magnesium dose correct they went away. The fatigue is something I live with daily. Some days it feels like walking through mud and some days just tired. It’s part disease and part prednisone. Pace yourself and taper slowly. We are here for you.
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