Fed up

[Bet121]

Why is PMR so painful ?

[jinasc]

The oxygen supply to the muscles is impaired.

I looked at your profile and it could do with a bit more information please

ie Date diagnosed, what pred started on etc...........this info helps to answer any questions you have. If you are unsure, just click on my profile or any other and you will see what I mean.

Come back and ask away.

[Bet121 in reply to jinasc]

Sorry , my comment was less about the aetiology of the disease and more about ( I’m fed up with having PMR ) just a bad day

[DorsetLady PMRGCAuk volunteer in reply to Bet121]

Maybe not on enough Pred?

If you’re on the correct dose for your disease’s activity then you shouldn’t hurt that much..,

..but we all get bad days -whether we have PMR or not.

Hope tomorrow is better for you.

[jinasc in reply to Bet121]

That is OK - you are allowed to grumble, rage and cry.................

[PMRpro Ambassador]

It shouldn't be if your doctor is managing it properly with the correct dose of pred.

[borednow]

We all (well, I do) get fed up - sometimes a bit of a grumble does no harm at all. My beautiful grandson is autistic and it can be more than a little frustrating at times. So, Bet121, please feel free to get in touch, absolutely no point in struggling on alone. Hope your day has improved.

[Bet121 in reply to borednow]

Thank you for your reply … I have an autistic son so if I can be of any help to you let me know . As for the PMR … well things are better today although it’s hard to adapt your life when you have someone else to care for . I’ve had PMR a for 3 1/2 years and am now down to 3 mgs .. good luck to you on your yourney.

[Bet121 in reply to Bet121]

Journey *

[KinnearD in reply to Bet121]

Interesting noting that your length of time with PMR is similar to mine and I'm also on 3mg prednisone. I have been asking myself questions about the pain I have and timing for another reduction. Is the hip/back pain PMR, gardening aches, osteoarthritis...those stress fractures, getting older aches? Not easy to figure out and though I'm grateful to be managing relatively normally, it does become tiresome.

[Bet121 in reply to KinnearD]

That sounds about the same as me … started on high dose of Prednisolone 40mgs … have now managed to reduce to 3 mgs ( was on 2 mgs for seven weeks but seemed like I wasnt getting any where ) . I sometimes doubt my diagnosis and need gp to reassure me . I have quite a lot of health knowledge as I come from a medical family . It doesn’t make it easy .

I saw specialist about two years ago and all tests were normal .

So in conclusion … just got to keep on going and hope the summer sun in this country will help .

[Kendrew]

As others have already said, it sounds like your medication may need tweaking.

There's usually so much going on though that it can all become quite overwhelming and wearisome.

All of us definitely experience bad days and sometimes they can persist and become bad weeks, but generally speaking, most of our issues can usually be resolved, or at the very least, eased!...... pain is definitely one of those things!

So........you probably need to speak to your GP or rheumatologist and discuss whether you need to increase your steroid dose for a little while. Once you get the pain under control everything else will feel much more manageable.

When I was diagnosed (3yrs ago) I felt a lot of despair, confusion and anger, but over time I've actually learnt to live with PMR and recognise that I do still have a life.....and a happy one too. Don't misunderstand me.....there's lots of things I'm no longer able to do but these 'voids' have been filled with all the different things I can do.

I've had to adapt my life accordingly but hopefully the PMR will eventually diminish (as it does with approximately 90% of sufferers) and then I can consider re-introducing some of the activities and life-style options I've had to forfeit.

Go with your 'bad day' knowing that even the worst day only lasts 24hrs. Tomorrow will be a better day.

[Hunter134]

Sorry to hear your fed up.It happens to all of us.Its a very frustrating disease.I hope to go in remission too after three years and still not going anywhere.Hope u have a better day tomorrow!!!