Support with weight.

[Allcraft]

Fighting steroids....have been following Slimming World, lost 2 stone got to target then PMR Struck! Put nearly a stone back on but managing to maintain weight and SW have put me at target for health reasons wasn't prepared to pay when 1/2 lb is on & off. I've cut carbs eat lots of veg and cook everything from scratch, feeling fed up at the moment, hair loss not helping!!

[DorsetLady PMRGCAuk volunteer]

Hi, Have a look at FAQs- both subjects covered there-

healthunlocked.com/pmrgcauk...

healthunlocked.com/pmrgcauk...

..and although you are fed up… “fighting steroids” is not the best way of looking at it…yes they can cause some unpleasant side effects, but they are at least allowing you to live life without pain…

[Allcraft in reply to DorsetLady]

Thank you will have a look, it's just that I spent so much money losing the weight and combined with the numerous side effects and various departments my GP talking about referring me to...just having a bad day and my son getting married in 5 weeks. I know I need the steroids at the moment but they're horrible xxxx

[DorsetLady PMRGCAuk volunteer in reply to Allcraft]

They may be horrible but for lots of people they have saved sight…or saved what remaining sight they have -all a matter of perspective..,

[PMRpro Ambassador]

Working with your pred is a far better way to go - having "fought" PMR without pred for 5 years, I promise even pred is preferable!!!

Most of us would advise low carb - unless you need the company of SW, why pay out all that money!!! Are you using their lower carb approach? They always struck me as being very carb-heavy

[Allcraft in reply to PMRpro]

Thank you, yes reduced carbs drastically and now not paying, they put me at target for health reasons, trying to stay on an even track. X

[SnazzyD]

Hello, what dose are you on now? What carb do you eat in a day? Salt can be a big factor with fluid retention particularly if you are above 10mg. I know it sounds trite but if you can accept the side effects for what they are now temporarily and not feel you have to fight, you’ll feel an awful lot better. I don’t know what your experiences were to make the doc do a rapid reduction. It doesn’t help that nobody tells you how it’ll be so when they do happen, it feels like one is having an unusual and severe reaction and along with Pred panic it’s a nightmare. Then follows a rapid reduction by the doc, followed by a flare and the patient has to go back up higher than they would be now if they had kept going slowly down. It’s a familiar picture.

[Allcraft in reply to SnazzyD]

Different Dr now and he phones me every 4 weeks, having regular bloods which are good and on slow taper..12.5mg for another week. I don't add salt to food( cooking/ eating) no bread, white rice, pasta, reduced potatoes, new best friend is a pressure cooker and loving home made soups!

[SnazzyD in reply to Allcraft]

Soups are a great filler as are fats. I wasn’t able to have even brown rice and no potato at all, though I started on 60mg Pred. What’s your fruit intake?

[MiloCollie]

Aaahhh. I empathise but keep going it sounds like you’re managing it. I’ve been fed up about my weight lately and the scales seem stuck but just an hour ago I bought a little dress for my hols ONE SIZE SMALLER!!! Focus on the little wins🤪🤗

[Allcraft in reply to MiloCollie]

Thank you…Well done on a smaller sized dress have a fabulous holiday!