Going round in circles: Spoke to Surgery - call the... - PMRGCAuk

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Going round in circles

ChinaWuntoo profile image
21 Replies

Spoke to Surgery - call the Covid line - who said call the surgery - the receptionist didn't understand and will get someone to call tomorrow.

I have received the Pfizer vaccine each time - two plus one they called a Booster three months ago.

Should I receive Pfizer again or doesn't it matter?

My question (sorry for my ignorance) is:

Can I insist that I was immuno supressed when I had the second jab (I was on 10mg Pred) and / or when I had the 'booster' jab (I was on 5.5mg)?

I suspect I may be asked "How do you know you were immuno suppressed?"

Thanks for your help.

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ChinaWuntoo profile image
ChinaWuntoo
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21 Replies
Koalajane profile image
Koalajane

I spoke to my surgery today who said they would email a link which I assumed would be to book an appointment. It was the link on nhs site telling you where the drop in centres were. I have replied asking if I need to take anything

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Koalajane

See my reply to this post -healthunlocked.com/pmrgcauk...

Koalajane profile image
Koalajane in reply to DorsetLady

I don’t have letters but do have texts so hopefully that will suffice

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Koalajane

Should do! Fingers crossed

Koalajane profile image
Koalajane in reply to DorsetLady

Thank you

Koalajane profile image
Koalajane in reply to DorsetLady

I contacted my surgery and have got a letter from them to take with me saying that they have been advised that I require a 4th Covid vaccination.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Koalajane

Good…

Koalajane profile image
Koalajane in reply to DorsetLady

I received my 4th vaccination today with no problem when I showed my letter. The centre opened at 9.30 and I arrived at 9.15 and was the 3rd person to have their 4th jab. A plus it was my 4th Pfizer as well.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Koalajane

Good…

ChinaWuntoo profile image
ChinaWuntoo in reply to Koalajane

That's encouraging.

PMRpro profile image
PMRproAmbassador

The change in vaccine for the booster was mainly for the AZ having been used for the first 2. The evidence was that Pfizer on its own did very well anyway, the 3rd jab with Pfizer in immunosuppressed patients brought the level of immunity up to the same as healthy subjects.

If you were on 10mg pred when you had the jabs, it is assumed to have compromised the development of your immunity. It isn't possible to test it easily - so you assume the worst ...

ChinaWuntoo profile image
ChinaWuntoo

Thank you each. This will help, I'm sure.

PMRpro - I was ready with the point about testing!! We learn so much on this site but actually my GP said to remind him when I get down to 3mg (I may have prompted him, I can't remember.

I'll post here with any developments.

Grateful to you all.

ChinaWuntoo profile image
ChinaWuntoo

Just an update. I don't know whether to laugh or cry. The circle is still turning.

I had a call from a nurse or a health care assistant (whatever that is) at the surgery. She didn't understand anything, even struggled with saying ‘immuno suppressed’ which left me wondering if she knows what it means. She had no idea about a fourth jab and clearly did not know what guidance is being given (she can be forgiven for that perhaps!). I would not accept this if I was worried: meanwhile I’ll hope that three Pfizer jabs is sufficient. The government keeps changing the information and I really have little energy to fight these people.

We left it that she would consult ( ‘dear’) and someone would get back to me (‘dear’).

Thank you.

PMRpro profile image
PMRproAmbassador in reply to ChinaWuntoo

How very professional! Not ...

Pixix profile image
Pixix

Spoke to my doctor last week…quoted JCVI, said I was on10mg for first injection. He said I don’t need a 4th jab. I’m now on 5mg & he thinks I may be on the lower doses for a very long time after I struggled for a month on 3 & 4mg, tapering. End of story, he’s a good doctor, he’s supported me very well over past two years. He says that those jabs are important for people with certain types of cancer & some who’ve had chemo etc. but not needed in my case.

Koalajane profile image
Koalajane

Having been invited for the 3rd jab (not booster) by my doctors I contacted them on Monday and have a letter to take with me to the drop in vaccination centre tomorrow. The wording was that they had been advised I should have a 4th vaccination

ChinaWuntoo profile image
ChinaWuntoo in reply to Koalajane

More circles?🙃

Koalajane profile image
Koalajane in reply to ChinaWuntoo

So now had 4 vaccinations

Koalajane profile image
Koalajane

I am hoping it will happen but my doctors did seem aware of it

ChinaWuntoo profile image
ChinaWuntoo

I think I might have misunderstood - I thought you were soon expecting both a third and a fourth!

ChinaWuntoo profile image
ChinaWuntoo

I'm pleased for all who have succeeded in their fourth. I am still waiting to see whether the surgery will do as they promised, look into it and send me a letter.

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