Last week I had an appointment at the hospital with a rheumatologist that I had never met before. He was wonderful. He really listened and had a really gentle manner. 3 years ago I'd been advised by the rheumy nurse to take methotrexate every other week due to hair thinning. He was quite horrified by this and made me promise to take a lower dose but weekly.
I told him my hip area was sore and he examined me and said he thought it was bursitis. We agreed on a treatment plan and he gave me his secretary's number in case I needed to speak to him. My esr was the lowest it's been in 9 years and he said I was very well in formed. I told him about this site and he took a note of it. I felt very positive.
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Suet3942
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Well done him. Isn't it lovely to get a really nice doc or rheumy that we can speak to on our level. Mine was pretty good too, but think he was being a bit hasty discharging me in under 2 yrs due to also my ESR/CRP was doing so well. However, I managed to get down to 6.5mg and have run into a few issues....so back up to 8mg and will see what happens.
Hello jinasc - it says above that you have a list of good consultants for PMR. I would love to find one for Suffolk, Norfolk, Essex. How do I find your list, please?
Click on the person's avatar and you get their profile page - at the top right is a blue box saying Message. Click on that and a box comes up just like writing a post but addressed to the person to whom you want to send a private message. Only they can see it, not even HU has access unless the recipient reports it if it is a nasty message.
When you get a message sent to you, a number appears on the Chat icon at the top of the page (has a paper aeroplane beside it)
I thought 360 degree feedback was all the rage these days. We won’t mention the mean ones. 🙄As long as people can be pointed to a good one if they are stuck.
I found a good one too and he is on the list now. I am off to see him again tomorrow and he has recommended to my Dr that I need a brain scan due to dizzyness I have had since last Nov when I was diagnosed. I have told her so many times how giddy I am but got nowhere. So nice to have talked to someone face to face at last who knows about PMR. My only real help has been this forum for which I shall always be grateful for getting me through this.
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