Tortuous left temporal artery

[Horsewhisper]

Hi everyone, further to onset of new and worsening symptoms during the past 3 months such as all over body stiffness, increase in all over body pain and left sided headache, increase in general malaise and fatigue, I had another ultrasound scan of temporal arteries, the ones in my armpit and neck. Loads of bloods taken along with a wee sample. When I saw Rheumy straight after the scan he said he would refer me for an urgent PET scan, which I will be attending tomorrow. Awaiting to hear back re: bloods and wee as only attended GCA clinic last week.

Just wondered if anyone has experienced anything similar?

[HeronNS]

I haven't, but it does seem like they are on the ball with tests and imaging. Hope all turns out well, or at least easily remedied. 💐

[Horsewhisper in reply to HeronNS]

Thank you for your kind wishes xx

[SheffieldJane]

I did and the outcome was a diagnosis of GCA/LVV ( Large Vessel Vasculitis). Abnormal cells were spotted in my left armpit. Good luck!

[Horsewhisper in reply to SheffieldJane]

Thanks SJ, if you don’t mind me asking, did you have any localised pain in the chest and shoulder? Any body stiffness and general pain all over at all?

[SheffieldJane in reply to Horsewhisper]

Nothing serious, a headache and the sense of not feeling right although I had got down to 3 mgs of Pred. My blood pressure was different in each arm. Another clue for my Rheumatologist.