I'm new here!

[MiloCollie]

I just wanted to say Hello and thanks to all fellow posters as everything is so helpful when you are newly diagnosed. I hope in time I can be of use to someone else.

[Koalajane]

Welcome Milo, I hope your PMR journey goes well

[PMRpro Ambassador]

Hi and welcome - everyone has something to contribute, even the person who struggled to get a diagnosis and doesn;t know what they have!

[MiloCollie in reply to PMRpro]

Thanks. I think I've had PMR for up to 2 years. I had a bad shoulder and an MRI and then both shoulders hurt mainly in bed and my hips have hurt for years! Do I still have a good chance of improvement even though late to diagnose and start Prednisolone? I was a Nurse but have had to stop work and am applying for early retirement on ill health (anxiety also).

[DorsetLady PMRGCAuk volunteer in reply to MiloCollie]

Hi, and welcome,

I had undiagnosed GCA for 18 months, and have now been in remission since September 2016.

Both illnesses are self limiting, so if it’s going to last, say 4 years, it’s going to last 4 years....it might just take longer at the beginning to get the built up inflammation under control...if it’s had a year or two rather than a matter of weeks.

You might like to have a look at this -

healthunlocked.com/pmrgcauk...

and we also have a pinned post (or see featured article under your post) that covers FAQs

[MiloCollie in reply to DorsetLady]

Thankyou so much 👍

[PMRpro Ambassador in reply to MiloCollie]

Impossible to say really - I had PMR for 5 years before eventually being offered pred which made a monor miracle with 15mg in under 6 hours. The rest of the journey hasn't been as easy to put it mildly. But I know others who weren't diagnosed for a long time and were off pred after several years.

[Coffeebeans]

Hello and welcome.

There's loads of info here so grab a cuppa and have a read. Keep posting 🙂

[123-go]

Hello, MiloCollie. I'm sure you'll be contributing along the way. It's so useful to have nurses on the forum- and we don't need to make an appointment. 😉Good luck and hoping you'll soon be feeling a lot better.

[SheffieldJane]

Hello and welcome Milocollie! You will. X

[Telian]

Hi and welcome.

Just keep reading and gradually you’ll find yourself contributing as many more do.

[Purplecrow]

Hi, you have arrived at an amazing source of accurate information regarding PMR and GCA. Many of the folks here are long -timers who provide links to valuable information that could take hours for others of us, to find. All that said, welcome to you.

My PMR was diagnosed 9/2013. I probably developed the disorder two years before diagnosis, but it took that long to mature into full blown disease.

As one of the long-timers said, "this disorder is not life threatening...but it is life changing.

Check in often, and contribute when you feel inclined. Often the words of other new members are most comforting for the first timer.

Kind Regards, Jerri