European Headache Federation recommendations for neurologists managing giant cell arteritis - 17 Mch 2020

[Sefu]

I found this today which I hope is useful as it is very recent. thejournalofheadacheandpain...

[DorsetLady PMRGCAuk volunteer]

Hi,

thank you.

Good to see they acknowledge that sight is still at risk within the first week of medication - that's not often mentioned, so can lead to a false sense of security.

But, they still are quoting being off Pred within 2 years without Tocilizumab and 1 year on it! Would like to see the figures on that actually happening.

[PMRpro Ambassador in reply to DorsetLady]

"with an aim to stop within 1–2 years if there is no relapse"

and thereby hangs the tale!!!! IF THERE IS NO RELAPSE ...

One year with tcz is achievable.

[DorsetLady PMRGCAuk volunteer in reply to PMRpro]

Would be interesting to know how many achieve...but probably won’t be around if and when the survey’s done!

[Devoid]

Very interesting thanks for posting this

[PMRpro Ambassador]

Nice and clear! A few interesting statements in it though - not least the presence of low/normal markers being associated with cranial GCA, that TAB is NOT particularly sensitive and "Both standard treatment with GC [40] and indeed licensed targeted treatment [41] for GCA confers significant risk of morbidity,"

[SheffieldJane]

Clear and interesting read. Thanks for posting!

[tangocharlie]

Wow, a technical article written in Plain-ish English, shows it can be done. Interesting for me, especially about the diagnostics eg PET scan as I'm going to have one to see if I have LVV.