Tapering going well, I think! 7mg / 6 .1/2 mg every other day for 10 days now . Trouble is I am absolutely shattered. No pain thankfully.
We lost our gorgeous little dog few weeks ago to cancer. She was just 11 years old. Still very upset so maybe it’s grief 😳
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SuziCutie
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Hello Patrees
So sorry to hear about your little dog, a very sad time.
However, you are now currently at the physiological dose, approx 7mg when your own Adrenal Glands need to start waking up & begin to work again. We need around 7mg just for our daily existence so this is when fatigue hits us very hard. So it’s a time of frustration & walking a fine balance between not getting too tired & remaining without pain but hoping those Adrenal Glands will wake up soon.
Missing your little dog isn’t helping, don’t try to reduce at all at this time & maybe even consider going back to 7.5mg for a month then trying again, that little amount may just help you feel better, then try again.
I am so sorry about your lovely schnauze (I presume in your profile picture). Losing a beloved pet is very hard to deal with, especially when they are young. My friend list her dog before Xmas and has been in a bit of a state of feeling low and exhausted and she is "healthy". Give yourself a chance to grieve 💜💜
Yes my profile picture is Rosie our schnauzer. It was such a shock. She wasn’t well so a visit to the vet on her 11 th birthday. Tests revealed cancer and told 2 days maybe a month!! She just had 2 more days. It was obvious we had to let her go. Still can’t talk about her much without crying my eyes out .
So sorry. Losing a loved pet is traumatic. You’ll be under stress due to your Pred dose getting to the point where you adrenals need to start working a bit. However, they may still be quite slow so an extra demand like grief could well make you feel awful. I’d ease up on the reductions for a few weeks, this stage can be hard enough without feeling so raw. In the grand scheme of things it isn’t much more Pred.
So sorry about your dog. I am at e a fly the same dose as you are. 7mg creeping to 6.5 and like you, am feeling exhausted, especially from early afternoon when I just have to sleep. If I don’t I just feel worse and worse till the end of the day. So I know how you feel. Sounds like it might be a good idea for you to go up to 7.5mg because of all you have been through.
I too was devastated when I lost my beloved Staffie. I felt completely exhausted too, with not an ounce of energy. This was several years before I developed PMR. I have had similar exhaustion when I have had worries concerning my son, and stressful situations. The emotional pain of losing a best friend is traumatic, and probably does affect your PMR. 😪
Much sympathy ! To-day I started to go from7.5 to 7 daily. So hoping those old adrenals will start working. I am walking 6 days a week (or trying to) 3 days for 40 minutes total with Lily at the unpaved park with a good bit of uphill, and 3 days on paved river trail, gentle up and down for 30+ minutes.
I find that I become quite breathless as this old heart has trouble pumping enough oxygenated blood to my lungs. Remember, we love our dogs in particular, but most of all the dogginess of them. Start looking for another 4 footed friend.
I’m at the same stage...trying to get to 4mg but 5 seems to be where my body wants to be and even then I have fatigue and low energy all morning...seems that in the later afternoon I can get going pretty good...come on adrenals, start doing your thing.,.,
So sorry about your pet. I still get sad when I think of when our dog died. The stress of that on top of your level of Pred is not a good combination. Like most people have suggested, I think you should stop your taper for now, maybe even go up for a while. Let us know how you get on. Will be thinking of you.
So sad to hear about losing your beloved dog - I have 2 Scottish Terriers & I know I would be devastated if anything happened to them, particularly when you are struggling with trying to taper your steroids. Know exactly how you feel as I am struggling to taper from 7.5 to 7mg and after 5 weeks am utterly exhausted by lunchtime and then if not able to rest in the afternoon feel grim. Possibly better perhaps to go back up a bit for the moment as being stressed depletes ones reserves massively.
I am so sad for you. My little Maltese turned 11 just a few days ago, I would be so lonely without her, I was told that she had Cancer last Aug. but she is still thriving, evidently the growth is not malignant. Once again my condolences.
I am so sorry for your loss. They are just like our babies. I am down to 7 mg at the moment from 15,but am struggling. I work full time and sometimes I just want to close my eyes in the middle of the day and go to sleep,at work. Not a good idea.
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