been off prednisolone for a month

[granelliheywood]

problem is I am in pain and my blood readings show inflammation fairly high I started on 15mg five years ago and after tapering down to 5mg a flare would come and I would go back to say 10mg and start again, this time after 5 years I was determined to taper to zero but after a month I feel like the tin man from the wizard of oz who had gone rusty from the rain do go back on preds

[DorsetLady PMRGCAuk volunteer]

Hi,

Do you think it’s PMR. That might sound a stupid question, but Pred has a habit of masking lots of other pains, and you must remember you are a few years older than before PMR, so bound to have a few more creaks!

If you think deep down it’s PMR, then try 5mg for a couple of weeks and see how much that helps. You can always stop then without an Adrenal blip. Also get your inflammation markers tested again, presuming they were raised before, and make an appointment with doctor.

If your surgery is anything like ours, you will have the results of your bloods, and your own trial with a Pred before you see doctor!

Do hope it’s not a return, but best to check.

[granelliheywood in reply to DorsetLady]

thanks for your reply will do just that and see how it goes.

[Rocketronzy in reply to DorsetLady]

My doctor says that prednisone will make enything feel better too

[Rocketronzy in reply to Rocketronzy]

One thing about this great site is

If we had nowt up with us we would feel left out.

🤔A little

Weatherand Hospitals

Great conversation apps. 🤣🤣🌹

I could write a book on hospitals.

Good night folks am Rabbit ing

🤣🤣🤣

🌹🌹🌹🌹

[PMRpro Ambassador]

Contrary to common perception amongst doctors, PMR can last a long time. The median (average) duration of pred management is 5.9 years - yes a few get off pred sooner but they are the exception. It is also not terribly unusual for someone to be fine on as little at 1 or 2 mg. It is such a low dose that if it works - why worry? It really is typical for symptoms to reappear after a few weeks in such cases.

If it were me I'd try a low dose, maybe 5mg, for a week and see what happens. If it makes you feel noticeably better - maybe 2mg is enough to hold it.

[PMRpro Ambassador]

Where was that? Time for a bodycam in an environment like that.

[Maisie1958]

I’ve been on prednisolone 4 years -mainly at very low doses that work well but just can’t stay in Club Zero for more than a month or so sadly. We used to say at at work “better pred than dead” but I still think I should be able to get off it completely! Atb x

[PMRpro Ambassador in reply to Maisie1958]

But 4 years is early days in the great scheme of things: median duration of pred management in PMR is 5.9 years.

[Rocketronzy]

Sorry to here that 😳 it’s a bitch. All the best 🌹🌹

[Rocketronzy in reply to Rocketronzy]

A great sensce of humor is a really good asset. Cultivate it. 😆

It does make things more bearable. 🧐😜

[Rocketronzy]

😱 you have a way with words 🤣🤣

Sos shouldn’t laugh really 🤣🤣

😮 good on you.

Nasty person.

All the best poops.

🌹🌹🌹🌹😊

[Constance13]

I can't get my head around this! Had you "upset" him in any way or was it just deliberate violence for no reason? Not that ANYTHING could excuse his behaviour. Horrifying!

[Hidden in reply to Constance13]

I removed posts so it could naturally close the issue for me. Thanks. X

[powerwalk]

He. Can I as how you have been getting on? Did you go back on the Pred?