Desperate to get off steroids but this stiffness seems familiar.
How does steroid myopathy differ from pmr? Consul... - PMRGCAuk
How does steroid myopathy differ from pmr? Consultant now says stiffness is myopathy, but it wears off during the day.
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Have you lost strength in your muscles? As I think that is one of the main features of steroid myopathy.
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If it is steroid myopathy you usually use muscle bulk - I did. I also didn't have stiffness, I had weakness, totally different. And the more I did - the worse I felt...
There are a LOT of doctors who want ANYTHING to be due to pred - they have a fixation about it.
Thats what i thought, I did lose a bit of muscle in the summer but I have had to give up riding because if the fractures. I think that recently it has started to come back as I do more walking. I am now on a third dmard, azathioprine, 2 weeks in and nothing other than tiredness to show for it! Hoping for the best with it. I don't need any doctor telling me I need to get off pred,I know just how bad the side effects are for some of us, but now they accept I started with GCA, I don't want to have any more irreversible effects.
I seem to get this steroid side effect explanation at regular intervals but I did have muscle weakness at the high doses, 20 plus, and to me this stiffnes that wears off during the day is quite different.