Why is it...?

[Constance13]

That OA (and sometimes PMR) pain is really bad in bed at night but during the day the only relief I get is to lie down on my recliner or go to bed??😡

[DorsetLady PMRGCAuk volunteer]

Think it called “Sod’s Law” 😏 or ‘Murphys’s Law” depending on where you were raised!

[Constance13 in reply to DorsetLady]

Both!😀

[scats]

I wish I knew I'm the same. I wonder if its being in the same position for too long? Perhaps we both need a new mattress?

I think DL has it right def " sod's law " around here.

[Constance13 in reply to scats]

Mine IS new! It’s the walking around that makes me hurt so much during the day.

[scats in reply to Constance13]

So sorry, wish I could suggest something.

[PMRpro Ambassador]

IS it PMR?

[Constance13 in reply to PMRpro]

Shoulders, upper arms and wrists, yes. OA, hips, knees and ankles. ESR 32.

[PMRpro Ambassador in reply to Constance13]

More pred. And maybe a split dose...

[Constance13 in reply to PMRpro]

Exactly what the doctor said this afternoon (I went in to have the flu jab). He saw the ESR had risen again, told him I was on 4mg, he said raise it to 10 for 2 weeks, then decrease by 2mg every 2 weeks till I get to 4mg again. You’ve been telling me to do this for ages, but 10mg 😡. Ah well, the experts win this time.

[PMRpro Ambassador in reply to Constance13]

I thought we had agreed you would stay at 5mg - one tablet before bed. What's not to like? And if that turns out to not be quite enough - 10mg on Sundays...

Lets face it - you won't be on them for another 20 years will you? It would be nice if you were but...

[Constance13 in reply to PMRpro]

Hee hee!

The doctor did add that because of the way the PMR has run for these last 6 1/2 years he doubted that I would get below 4mg.

A doctor actually believing that someone could be on it for life!?!

[PMRpro Ambassador in reply to Constance13]

There are a few sensible souls out there!

[Hidden]

Hi

I find it better to rest on my bed in the day as it helps the whole body relax.

At night, l have to wrestle for my space with DH but l have lots of pillows too, to help take the stress off!

When my PMR was very bad & after Chemo l had to evict him, Bless, but sometimes you need your own space 🛌

Mrs N x

[Constance13 in reply to Hidden]

Oh dear!😏 Our bed is huge, so no trouble there, but we’re inclined to “part” more in the night and then I turn round for a cuddle and he’s not there.😀

[PMRpro Ambassador in reply to Hidden]

Probably like Constance in Germany we have a double bed with 2x single mattresses and 2x single duvets. Bliss...