I was wondering if anyone else has gotten on Actemra and tapering down off Pred? I had been diagnosed with PMR 4 yrs ago at 54 and more recently GCA.
Had trouble bumping down Pred w/out markers going up, got down to 2 mg. but had to bump back up, ending up at 15mg again. Started on Actemra in March 2018. Rheumy has me bumping down 1 mg every 3 weeks. Been going fine till last week getting down to 4 mg. (Also had a very busy week with visitors and numerous nights out.)
Started feeling tired and sore the day after bump down to 4. Thought it would pass but over a week later still feeling like I need a nap and can't concentrate. Muscles, hips, shoulder (1 side) are sore.
Is 4 mg a tough hurdle? Is anyone else on Actemra and tapering off Pred?
(I called my doc to ask for a blood test to check markers, I feel that bad.)