gca flare?.,.: I woke at 6.10 am, today, with a... - PMRGCAuk

PMRGCAuk

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gca flare?.,.

karools16 profile image
7 Replies

I woke at 6.10 am, today, with a headache, which I haven't had for some years now. Reminder of the GCA pain I used to have. Jolted me out of bed, as with GCA, the headaches don't let you lie down. Sat up for awhile. My DSNS dose Pred, today, is 2mg.I had an appt. with surgery nurse and my BP was normal. Having eye test Monday, and GP wed, next week. Am I ok with my present dosage, or should I increase it? The headache and scalp pain are not there all the time.

On the plus side, when nurse weighed me, I had lost 2 stone since Jan. Think nurse more excited than me! I haven't been dieting, but C.Diff took it's toll, Feb.

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PMRpro profile image
PMRproAmbassador

Give it time - but if it persists or gets worse you may need a discussion with the doctor. I do hope not when you have got so far but if you don't neglect it you may get away with a much lower dose this time if it does turn out to be a flare.

karools16 profile image
karools16 in reply toPMRpro

Thanks for that PMRpro. Haven't had another in past 2 hours.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply tokarools16

Good! Hopefully it was not GCA, but just a random headache that occasionally occurs. But as PMRpro says - monitor it, and discuss with surgery over phone if it escalates.

Take care!

karools16 profile image
karools16 in reply toDorsetLady

Thank you DorsetLady. After not having that type of headache for years, it was a shock to my system. No more since.

I was sick just recent and had headaches which went away with Tylenol and ibuprofen. GCA headache is not touched by either.

Might try them n see. It took the worry away for me.

karools16 profile image
karools16 in reply to

I am not prone to headaches, but when my GCA first started, it was like my head being chopped!

jinasc profile image
jinasc

You are coming up to weekend, I would not wait - I would contact medics pronto - otherwise over weekend it means A&E.

GCA, in remission for 6 years and still watching................

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