Biopsy for GCA: I saw the consultant this week to... - PMRGCAuk

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Biopsy for GCA

marpil profile image
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I saw the consultant this week to receive the results of a biopsy operation which was carried out two weeks ago. The result was negative but I was assured this did not prove anything. The biopsy is only the 'gold standard' test, very annoying to think I went through this for nothing.

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marpil profile image
marpil
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PMRpro profile image
PMRproAmbassador

I do often suggest people ask the rheumy if it will change anything about their treatment - i.e. are they confident enough it is GCA to continue with pred as a clinical decision, on the basis of the symptoms.

On the other hand - at least you have a doctor who knows the value (or otherwise) of a TAB. If it is positive it is 100% certain it is GCA. Which is something that can be very useful at some point in the future when you end up with a plonker who decides that your previous doctor was wrong...

granny-b profile image
granny-b

You don't say if you were taking steroids before the biopsy and how long after going on steroids they did it. I know some consultants don't do the biopsy if you have been taking steroids for a while because the steroids affect the result.

Are they still treating it as GCA based on your symptoms? Are they looking for something else?

Good luck and keep in touch.

granny-b profile image
granny-b in reply to granny-b

Have just seen your previous post. I am surprised that you had a biopsy after a positive scan. Your symptoms sound pretty familiar.

Take care and let them look after you. X

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