I 'got' PMR in October 2015, finally was put on pred on 30 March 2016. I am down to 6 mg but increasingly stiff. I have extensor tendonitis esp in left foot but hands also stiff in the morning and boy am I tired. I fall asleep at 9 or 9.30 and the alarm has to wake me at 6am (and I won't mention the huge, loud snoring machine I have become).
I get that everyone is different and of course less pred means less other normal aches and pains are starting to appear. I guess the best advice would be to stay on six until my body is really adjusted to the dose.
Another hiccup is that I just went to the optician by chance and I have pre glaucoma. Why don't rheumys suggest that if you have PMR that you visit the optician very regularly? I only knew to go from all of you. I have an apt with a specialist in February (I hope my eyes don't deteriorate more before then...yipes).
Thank you for all your support and cheeriness. It really does keep my spirits up and the expertise is a true life line.