In May 2015 I came off my cortisone treatment after having had PMR and GCA for 2 years and 7 months. CRP and ESR immediately began to rise. Stiffness, sustained dry cough, temple tensions and jaw pain indicated continued inflammation, but I couldn't bring myself to accept this.
In January a new PET-CT showed inflammation in the whole aorta and outgoing branches. I previously had a dilation of the ascending aorta and had now also developed a new aneurysm in the abdominal aorta (3 cm wide). I began taking 60 mg Prednisolone in January and am now (15/5) on 30 mg. A new PET-CT has shown that all the inflammation in the aorta is gone.
My rheumatologist recommends that I lower the dosage by 5 mg every 14 days down to 20 mg and then by 2,5 mg at a time. To me this reduction seems a litte too fast. I used the very slow method the last time (one day old, six days new... etc.) At what dosage would it be appropriate to adopt this method?
My inflammation markers are now perfect and, other than some problems sleeping, I have no symptoms of either the disease nor the treatment.