Rheumy is empathetic, and supportive. He’s not convinced, or more accurately doesn’t want to believe, that it‘s Temporal Arteritis or Polymyalgia Rheumatica because I’m only 53. BUT I respond to treatment with steroids so that’s what we’re going with. Plus the exhaustive bloodwork doesn’t really show anything else to pursue. I am meeting my new primary care on Friday and am supposed to ask her about a few things:
1.What is causing the (very small amount of) blood in my urine since my diagnosis in June?
2.Should I see an oncologist to be absolutely sure there’s no cancer hiding because of the steroids?
So tomorrow I start Methotrexate as a steroid sparing treatment. We are both concerned about the high dose of pred I seem to need to maintain any type of functionality. Really hoping this works, and I get some other answers on Friday.
I’m a get up and goer, but I’m letting myself just vegetate until I have more answers. Have to give up on being Wonder Woman sometime, and I guess it’s time.
Anyone have any information on recovering from being in the hospital? I’ve heard that there’s a recuperation period after being hospitalized, not to mention the pred dose has me weak and ditzy.
Thank you all again for your constant support!