hAve had quite a up and down illness so far nearly three years from onset of GCA been on the very slow reduction plan recently all seemed OK down to 12/11 mg but last couple of days have had niggling pain above left eye at top of forehead also left ear seems weird not excruciating pain but just there niggling away and of course I think here we go again after doing well and feeling reasonably fit will it mean yet another increase in Pred? I try not to tell anyone as they think here she goes again some of my sons clients are doctors and have told him it should be over by now and that 2 years is a maximum he says do you think you are reliant on Pred ? I do most of the things I used to do so it hasn't been a burden to anyone else and I just make my excuses and go to bed early if I am feeling extra tired. I was so up beat but this has brought reality back. did have a nasty fall down the stairs a couple of nights ago which shook me up. am I a malingerer? just needed someone to offload it on!
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