Hi guys. Diagnosed with PMR 4wks ago and put on 15mgs for last 4wks. Am due to.go down to 12:5 today with ESR blood test in three weeks. However had a bit of shingles and this cold/cough virus for last two weeks and thinking it would be better to come down in 1mgs while am still a bit vulnerable.
My main question is regarding GCA. What reall y are the signs of it, are they many and varied. Obviously I had to be warned a bout the risk of having/getting it. My ESR was originally 70 but went down to 20 after just seven doses of 15mgs. Back in December had awful head/ scalp pains but didn't think of going to the doc as there was a headache virus going round. He says notify him of any new head pains from now on. I feel great on the pred and hope to I don't get too many probs while reducing. I have mountains of sleep to catch up on but the relief of being pain free and having some of my brain back is incredible, I have to keep telling myself to slow down and rest up as don't want to burn out and be back to square one. I have ME and have had Graves Disease (also auto immune) in the past so u think I would have learned by now hey! Thanking you in anticipation cc