Thyroid and Pred: For info- PMR started in April... - PMRGCAuk

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Thyroid and Pred

suzieh profile image
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For info- PMR started in April 2012; diagnosed and Pred started in Dec 2012

Have just got blood test results for my thyroid function and for PMR inflammation - after reducing pred again from 2 mg - 1.5 mg everyday. Dr says I now need to increase thyroxine again!

Just to make others aware what can happen as Pred goes up and down.. When taking 15-20 mg of pred I had to half my thyroxine dose... Now taking low dose of pred. having to increase thyroxine again. Feeling relieved as I was feeling very tired........and weight not shifting even though eating carefully. I hope the increase in my thyroxine gives me back energy and allows me to lose weight back to pre pred level ( probably about half a stone). Fatter face has gone.

When thyroid is rebalanced ( month or two?) will try and reduce Pred again. Still aiming at feeling well and aiming at zero Pred.

Dr also says I can have another bone scan in the next year

( just to check) last one done just over 2 years ago which showed bones were in good condition.

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suzieh
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Celtic profile image
CelticPMRGCAuk volunteer

Suzie, well done - all sounds good! I'm sure your post will be very helpful to others suffering from thyroid issues whilst on Pred for PMR.

Judigardener profile image
Judigardener

Hi

I'm interested in this. I am hypothyroid and been on Levothyroxine for about 8 years. The PMR and the Pred seem not to have made any difference to my thyroid & thyroxine. I too have put on weight.

I started off on 40mg of Pred in Nov 2013. I got down to 1mg last summer but began to feel awful and am back up to 13.5 having been at 14mg. I long for the day when the PMR has gone, the Pred has gone and I don't feel and look so heavy. Hope the sun is shining on you today as it is here in Berkshire.

suzy1959 profile image
suzy1959

I too have Hypothyroidism, which I have had for 22 years, and have been on Pred. for 26 months- at 11mgs now. My thyroid levels have stayed the same throughout, so my medication has not changed. I am due another test in May so we'll see then. The only time my thyroid levels have changed significantly was when I had shingles and cellulitis and it was explained to me that the levels can change if the body is in some kind of shock.

Annodomini profile image
Annodomini

Neither of the two GPS I see has mentioned the possible effects on my thyroxine dosage. I am now, and have been for about ten years, on 100mcg of levothyroxine. Annual blood tests have not indicated that any change has been necessary. However, I will raise the subject with the next GP I see.

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