I have over 2-3 years (GCA halfway through this time) managed now to get down to 1mg pred and have been on this dose for two months and hoping to stop taking it after Christmas. I have had sore shoulders for some months but don't know if this is anything to do with polymyalgia. My left shoulder is now so sore that I have to lie flat on my back in bed and take co-codamols to get any sleep and it still wakes me up in a lot of pain several times a night. I finally went to GP yesterday and he has done a blood test, results tomorrow. He thinks probably I'll have to go on a higher dose of preds. Although he is testing me for he says a couple of other things. As the pain is now very much worse in the left shoulder than the right, is this a symptom of polymyalgia. I had a feeling the pain should be equal on both sides. I was so sure I had got over this illness! If my ESR level is not OK how high a dose of pred is the minimum I might need to get things in control again.
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