Hello lovely fellow PMR sufferers. : I've been... - PMRGCAuk

PMRGCAuk

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Hello lovely fellow PMR sufferers.

Lollysimp1 profile image
9 Replies

I've been taking Pred for nearly 2 years starting at 15mg finally down to 1 mg for the past 4 mths now. As I've been feeling fine at this dose ( 2 mg alternate days) my Rheumatologist suggested I try stopping them all together.......so I did about a week ago

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Lollysimp1 profile image
Lollysimp1
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9 Replies

Great!

Lollysimp1 profile image
Lollysimp1 in reply to

Thank you Anniebelle, here's hoping

Annodomini profile image
Annodomini

This has an unfinished feel about it! Is there some consequence, or are you thriving? Anyway, good for you. I'm almost there too.

Lollysimp1 profile image
Lollysimp1 in reply to Annodomini

Hello thanks for replying so quickly. I'm not sure, I guess I'm feeling ok my muscles are a little sore and I'm getting a lot of hot flushes but nothing major. I guess I was asking if anyone had stopped taking the Pred from 1mg and had been ok? I've been surfing the net and had confused and frightened myself a bit. Good to hear you're almost too, it's been a long and painful road so here's hoping for calmer waters. :-)

Badgergirl profile image
Badgergirl

Fantastic! Do you still feel OK? If so, then the PMR has burned itself out naturally.

Lollysimp1 profile image
Lollysimp1 in reply to Badgergirl

Yep, still feeling more or less ok a little sore but nothing major. I really hope it has! Thank you

optimist-ok profile image
optimist-ok

Well done! May you continue to do without the steroids.

Lollysimp1 profile image
Lollysimp1 in reply to optimist-ok

Thank you and here's hoping

Whittlesey profile image
Whittlesey

Congratulations !

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