Hello lovely fellow PMR sufferers.

[Lollysimp1]

I've been taking Pred for nearly 2 years starting at 15mg finally down to 1 mg for the past 4 mths now. As I've been feeling fine at this dose ( 2 mg alternate days) my Rheumatologist suggested I try stopping them all together.......so I did about a week ago

[Hidden]

Great!

[Lollysimp1 in reply to Hidden]

Thank you Anniebelle, here's hoping

[Annodomini]

This has an unfinished feel about it! Is there some consequence, or are you thriving? Anyway, good for you. I'm almost there too.

[Lollysimp1 in reply to Annodomini]

Hello thanks for replying so quickly. I'm not sure, I guess I'm feeling ok my muscles are a little sore and I'm getting a lot of hot flushes but nothing major. I guess I was asking if anyone had stopped taking the Pred from 1mg and had been ok? I've been surfing the net and had confused and frightened myself a bit. Good to hear you're almost too, it's been a long and painful road so here's hoping for calmer waters.

[Badgergirl]

Fantastic! Do you still feel OK? If so, then the PMR has burned itself out naturally.

[Lollysimp1 in reply to Badgergirl]

Yep, still feeling more or less ok a little sore but nothing major. I really hope it has! Thank you

[optimist-ok]

Well done! May you continue to do without the steroids.

[Lollysimp1 in reply to optimist-ok]

Thank you and here's hoping

[Whittlesey]

Congratulations !