I am a married mother of 3 boys and I have PKD and PLD. I was diagnosed in 2002 during a routine scan of my second pregnancy. There is no family history because I have mutated a new gene, rather clever of me!!!
Several years later and my kidney function remains within normal limits, however the size of my kidneys and liver causes me a lot of pain and discomfort, not to mention the added humiliation of being asked if I am pregnant!
Vanity aside I consider myself lucky to have only been in hospital once with an infection and I have learnt to have a very high pain threshold!
The biggest worry for me is my beautiful boys, I pray that either they are PKD free or medical research advances so much that it will not affect them like it has so any people that I know.