Until I was in my late 20's then was told I didn't have PKD, so I didn't need to be seen again. IS this correct? I am now 44. I've read recently that symptoms usually start between 30-60. It's been playing on my mind that my dad had it, his siblings have died but nothing was said about them having it, I have 7 siblings and only I went for the scans, I worry about it, my children are Cystic Fibrosis carriers (on their dads side)
Last edited by adelebw
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