Saturday IR Update

[PaigeyPaigeForLife]

Hi guys, I hope this day is meeting you guys in no pain. I seem to be doing great from my IR procedure, no tenderness in the spot, i can finally sleep on my right side... Moving forward do far no pain yay for me.

I personally think the IR procedure is something to explore, i know its different for every individual but it is something to think about. I think i posted a link on IR procedure.

[Wmspl]

Can you forward the link pls again, Thanks

[PaigeyPaigeForLife in reply to Wmspl]

Here is the link, it is talking about what Interventional Radiology is and the benefits. I shared it because I know there are lots of people who can get some relief with pain...

I tried looking for one especially about PKD and IR but found none. youtu.be/-broGPtxV50(Not working as expected?)

[Wmspl in reply to PaigeyPaigeForLife]

Thank you 👍

[Wmspl]

Nice to hear that ur doing well, the IR procedure has given us confidence.

Great Update

[Rick234]

That’s great that you’re better, I was about to ask you, since you complained in the forst few days...

[Rick234]

Now you’re feeling better, would you mind if I asked you a few questions? Was thay schlerotherapy what you did? Like were the cysts “killed” (filled) with ethanol or something?

What was the size of the cysts you drained? I have one of 4 cm on my left ribs that is bothering me a lot...

Did you have it i the uk? What hospital?

Best wishes!

[PaigeyPaigeForLife in reply to Rick234]

Intervention Radiology, my cysts were 16cm and bigger it was done in Baltimore Maryland Johns Hopkins

[snowcastles]

Hi PaigeyPaigeForLife,

you are a champion for sharing what you went through I had a similar reaction to this procedure, the fever and how it has healed and progressed into comfort from the cyst going down.

Before it was drained As I sleep on my left side I had missed sleeping though discomfort and pain and the cyst felt like it was caught in my side under my ribs, I found it hard to breathe and it was painful.

After the cyst was drained through a syringe at the radiologist I felt instant relief. I fell asleep at night. I still have pain from another similar sized cyst on that kidney that is positioned in the centre of the kidney but its bearable if I don't do so much around the house.

Other symptoms are as my kidneys are huge now I am tired, can't eat much and have had repetitive bad infections that I was told were mild. I was in a lot of pain. Seeing my GP and doing a urine test I was told that I could have antibiotics for this two lots and had another infection also in my liver.. I also got antibiotics for this also.

Good news is the infection must have calmed down and my kidneys have since calmed down a lot and I can sleep. I do get very sore if I do vacuuming, lift anything much like shopping, bend to do dishes, too much around the house. Good news the kidney specialist has given me a permanent antibiotic for my kidneys to stop infection from reoccurring all the time. I'm taking it and go back in a month. I can write back on here later and let you know how it goes.

Just thought to share this.

Cheers

Snowcastles

[PaigeyPaigeForLife]

Thanks for sharing snow castles, I understand about the pain when sleeping. Not so much pain as before just discomfort from my enlarged kidneys.

I am however suffer with depression and anxiety so not having a good time right now.

I hope that you are feeling and sleeping better.