Has anyone been diagnosed with Pudendal Neuralgia due to
Symptoms of persistent genital arousal? Seeing an OB/GYN today after 6 weeks of suffering!!! Awful and embarassing problem!!! Am 66 years old and my Internist never heard of this. Website psad.nl can ecplain some of this as well as pudendalhope.com
Any thoughts??? Pam
My friend had this due to Tarlov Cysts. Try Gabapentin and Cymbalta combination. 300 mg gabapentin 3xday and 60mg Cymbalta.
Hi, I have had what I believe to be pudendal nerve impingement for a number of years and one of the systems is as you mention. My GP put me on 2 x 300 mg Gabapentin a few years ago and I was on it for 9 months. It didn't really stop the pain just made me feel zoned out and brain dead so I didn't care so much about it. However, I then developed teeth problems, I believe to the dry mouth that occurs with this medication. I decided to stop taking it and had awful withdrawal symptoms for about 3 weeks. I see someone has suggested cymbalta as well. That also has similar withdrawal problems and bad side effects so would suggest proceeding with caution... Personally I have found a TENS machine helps a great deal and the condition has become less severe over the years. Hope this helps. Good luck!
Thanks so much! Yes was prescribed gababebtin yesterday. Only 100mg qd. We'll see. Also using TENS but pain isnt as bad as the constant vulvar ets stimulation I'm having. I also think it is something to do with
Pudendal nerve. Will see a Neurologist if doesn't improve. My Gyn was no help nor was my internist knowledgeable about this condition. It is maddening!!!!
Yep. I know... I tried so many alternative therapies over the years. When I said pain I meant that over stimulated sensation. Got used to calling it pain as my physiotherapist used that term. Another option to try is internal physiotherapy. It helped lessen the condition for me and sometimes cures it completely. The longer you have it the harder to get rid of so suggest you act sooner rather than later. Google Simply Health and Maria Elliott in London. She' is highly trained physio in pelvic floor disorders. Don't have a physio try tightening the pelvic floor. My go suggested that! You need to do the opposite. Hope you get help. Horrible condition I know.
Thank you. Am in states. Ut will google her more information. So glad to know I am not alone with this ccrrraaazzzyyyyy disorder. Godblessu. Pam
Hi Pam. I was diagnosed with this but it wasn’t the problem. My sacrotuberus and sacrosphinous ligaments in my right buttock had been stretched due to overuse. They ‘ juxtaposed’ and as a result, the rear branch of my right pudendal nerve AND a section of my right inferior rectal nerve had tethered to the ligaments and fascia. I am fine when I stand but when I sit or lie down there is chronic pain.
I had a surgery in the U.S. in 2011 which greatly helped to rid of the intractable burning red hot searing pain I used to feel. I was not healing as expected and found out two years ago ( via an X- ray at a private chiropractor’s office ) that the metal titanium Filshie clips used in a 1998 tubal ligation had migrated in my pelvis. One was sitting on my rectum causing terrible pain and incontinece for nine years until it was removed last Spring.
I am awaiting surgery to have the other clip removed from behind the dome of my bladder where it feels like it is irritating my bladder, the amount of urine it can hold AND possibly irritating ileum bowel.
Do you have any metal hardware in your body? Has you done work that may have over stretched the ligaments in your pelvis? Nerves can be stretched. Are you a gardener?
I did have a high sex drive before my indolent injury manifested chronically BUT I attitubute that to being fit and very healthy.
Hi! I was wondering if you could share the doctor’s name that found out that your nerves were tethered to the fascia and ligaments. Also, where was your surgery performed and with what surgeon? Trying to find someone to help figure out what is pinching my pudendal nerve and how to fix it! Thank you!!
Dr. Stanley Antolak released my rectal nerves. He was able to determine exactly what was going on during his surgery on me. The surgery was done at St. Joseph’s Hospital in St. Paul, Minnesota.
Physio made my injury worsen. TENS aggravated the nerves. I needed surgery after three flouriscopy- guided nerve blocks with anaesthetic and cortisone could not calm them down.
I hired a registered nurse consultant. She was the reason I finally got surgery after 3.5 years of living hell. No medication helped. I lost my sanity and almost my life for lack of proper nerve pain control and profound sleep deprivation.
So sorry for you. Thank god ur better. Started PT today. All due to vaginal wall spasms. We'll see. Thank you
Good luck. Have you tried magnesium supplements ? Magnesium is the mineral that relaxes muscles.
Epsom salt baths also relax muscle because the salts are magnesium sulphate,.
I have a prescription for Compound vaginal suppositories that contain 1% Lidocaine and 10% Valium. I use two every evening at bedtime. Without them and a sleeping pill, I would not be able to sleep.
Thank you so very much!
