Turkey tail mushroom: Has anyone been advised... - PBC Foundation

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Turkey tail mushroom

Haking profile image
12 Replies

Has anyone been advised to take turkey tail mushroom tablets? They think it helps the T cells to fight back.

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Haking
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12 Replies
Ballymahon2 profile image
Ballymahon2

No

IOW-gal profile image
IOW-gal

Never heard of them, so no.

Wocket profile image
Wocket

I think it’s supposed to boost the immune system so not sure it’s a great idea. I might be wrong but I think our immune system is what’s attacking our bile ducts. Please someone step in if I’ve got it wrong.

Sydgal profile image
Sydgal in reply to Wocket

Hi Wocket, i have been getting sick with lung infection very frequently.. so I wanted to try and boost my immune system with a immune support supplement.

Are you saying immune support supplement are bad for us PBCer?

Thanks in advance.

Wocket profile image
Wocket in reply to Sydgal

I wouldn’t boost my immune system but have you though about a salt pipe. My dad used to swear by them.

Sydgal profile image
Sydgal in reply to Wocket

Hi wocket,

Thank you for the recommendation, i have ordered a salt pipe on line and will try it once i receive it.

Thanks again.

Wocket profile image
Wocket in reply to Sydgal

Good luck I hope it works for you.

Sydgal profile image
Sydgal in reply to Wocket

Hey Wocket,

Just wanted to say Thanks for telling me about the salt inhaler, i have been using it for the past week and a half after purchasing it online, it has helped with clearing up my cough.

Doctors never mentioned anything about salt inhaler ☹️ ( that’s why this Group is great as people like you share good tips) 👍🙂

Appreciate you for sharing good ideas with others 🙂👍

Wocket profile image
Wocket in reply to Sydgal

So glad it has helped. Doctor just don’t know because most people right off the old remedies.

in reply to Wocket

Thank you Wocket for sharing this information,, my husband suffers every winter with a nasty chest cough , so I'm going to purchase a salt pipe for him to try out!

cazer profile image
cazer

No you're right wocket... It is our antibodies which atack the little bile ducts in the liver causing the scarring, so boosting these seems a very bad idea...

I'm on immuno suppression after having a transplant... So a def no go...

Are we talking about for pbc haking..??

MissusTee profile image
MissusTee

You already have an overactive immune system, why would you want to support it further?