gastroparesis

[Daisy50]

Can anyone tell me what the treatment for gastroparesis is please. My daughter can't take any of the meds eg domperidone

[butterflyEi]

Hi Daisy50

I see no one has been able to answer you and I have no experience to share however I do use the NHS site for information for myself and find it is quite clear in its explanations. I have copied the link below for gastroparesis and hope it will be helpful.

nhs.uk/conditions/gastropar...

[MissusTee]

I'm prescribed metochlopramide to empty my stomach quicker. It also prevents vomiting.

[Daisy50 in reply to MissusTee]

Do you take it all the time as the meds he gave are dangerous when take with other medication she takes. (Domperidone)

[MissusTee in reply to Daisy50]

I have been on domperidone before, and it gave me the worst constipation ever (it's meant to do the opposite!), but I took it with lots of other meds. I don't take the metochlopramide all of the time, although I know that I should as it speeds up the emptying of the stomach. The best person to ask will be the pharmacist who will know about medication interactions.

[Daisy50 in reply to MissusTee]

They have already said that its a bad idea to take the domperidone with the other medication. He just would't listen. He said that when she was taking the metochlopramide she wasn't allowed to take them all the time. So everytime she eats she is sick so if she is only allowed to take them for 14 days what the dickens does she do for the rest of the time

[MissusTee in reply to Daisy50]

That sounds horrible for her and worrying for you. I hope that she is being seen by a specialist rheumatologist in scleroderma rather than a normal rheumatologist? Also, has she been tested for SIBO (small intestinal bacterial overgrowth) as I got that from limited intestinal movement, and that can make you feel rotten.

[Daisy50 in reply to MissusTee]

No only a gatlstroentorolgist. No more test being done told her to go away as he wasn't doing anything else. She is sick almost everytime she eats. She got to the stage she hardly eats and it makes her feel really ill. I'm fumming, he just couldn't be bothered we were in appointment for less then 5 min.

[MissusTee in reply to Daisy50]

That's awful. You could really do with seeing a rheumatologist who specialises in scleroderma.

[Jaffacake_hero in reply to Daisy50]

or a neurogastroenterologist,they specialise in gut motility disorders.

[Daisy50 in reply to Jaffacake_hero]

We don't have one here and they won't send her to one. I looked into going private but all in all was well over £2000

[JonesJ430]

My gastroenterologist prescribed me omeprazole, but it was cheaper for me to buy it over the counter, I used Nexium.

[Daisy50]

She is already taking omeprazole and it doesn't help only helps with the GERD that she has

[Lizard28]

Hi, I have just been diagnosed with Gastroparesis today, my consultant was supposed to send me a letter but I didn’t receive it. My GP called me to say that the gastro consultant doesn’t need to see me again but wants me to go on erythromycin long term. This medication makes me feel awful and I told her this. She hasn’t really heard of Gastroparesis before and said he was supposed to send her a leaflet to help me but she didn’t get it and now doesn’t know what to say. I’m not going on an antibiotic long term. Honestly, I’m losing faith in doctors, I still don’t believe he has the correct diagnosis, ok my gastric emptying scan proved I had slow movement but he did another test last week which I don’t know how that went yet, it was the ct with contrast and I had to drink the horrible moviprep an hour before the scan. It’s taken me years to discover it’s certain foods that make me sick, I can eat meat with no problem yet I can’t eat soup, fish chicken without being sick. Sorry this is more of a rant, I’m still annoyed at that doctor for discharging me like this and problem is still not sorted. I also see a rheumatologist and a haematologist, I’m not sure if any of this is linked, but these consultants actually listen to me, I find the gastro docs very arrogant and can’t wait to get rid of you. He was my third one.

[Daisy50 in reply to Lizard28]

They told us you can only use erythromycin for 3 days at a time, not allowed to use long term. The one my daughter see is a waste of time twice he has given meds that she really can't take would cause her mayjor problems, he is just not interested. She finds it hard to eat as she ends up being sick in constant pain and no one is inrerested

[Lizard28]

I really feel your frustration, I honestly don’t trust doctors anymore. I did receive a letter today from him saying that he doesn’t need to see me at the clinic anymore as if I take the erythromycin it wud solve my problem. He said it’s a safe drug and I can take it long term. Mmm, im not taking an antibiotic long term as it also makes me sick. Im really back to the drawing board as it doesn’t solve my problem. I hope you get your problem sorted out.

[Daisy50]

I'm fed up of arguing with them, she is allergic to the antibiotic that they gave. There are other options but he won't even talk about it. I have just bern diagnosed with crohns and they won't even help me just said it will get worse but we aint giving you anything that will prevent it from getting worse and then discharged me

[gwillistexas in reply to Daisy50]

😳😥. I’m sorry.