Hello everyone longtime 🙏: I’m moving to... - PBC Foundation

PBC Foundation

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Hello everyone longtime 🙏

Sachin1234 profile image
10 Replies

I’m moving to Chantilly Virginia so bye to Kentucky after 16 years 😔🤗..

So I need a help from pbcer living around that area for good liver and endocrinologist, please!!

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Sachin1234 profile image
Sachin1234
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10 Replies
Cyndylouwho profile image
Cyndylouwho

I’m in VA but my provider is in the Richmond area. Plus I just started with all this so I don’t know I how good she is. Hope you find someone good. I would check with the biggest hospital near you n also check the hospitals rating. God bless.

Dcgal profile image
Dcgal

I go to Dr James Lewis at Georgetown MedStar in Washington DC

Aprilbalech profile image
Aprilbalech in reply to Dcgal

Hi I live in Maryland and I am looking for a good doctor as well. I still don’t have a definite diagnosis. Do you think your doctor is experienced with PBC? Thanks.

Dcgal profile image
Dcgal in reply to Aprilbalech

Yes. And that is why I go to him. He is a gastroenterologist

Aprilbalech profile image
Aprilbalech in reply to Dcgal

I see an go doc in Annapolis and I’m just not sure about things. He’s not really that concerned. He doesn’t think it’s pbc because my alp is never elevated. My lfts went up while on antibiotics but th n came back down to normal. I’m just so nervous he will miss something. I do have the positive Ana.

Dcgal profile image
Dcgal in reply to Aprilbalech

PBC is indicated by positive AMA

gwillistexas profile image
gwillistexas in reply to Aprilbalech

PBC I don’t think PBC is diagnosed solely on positive AMA. I believe there has to be at least two biomarkers, 1) being positive AMA and 2) being elevated ALK PHOS and/or elevated bilirubin.

gwillistexas profile image
gwillistexas in reply to Aprilbalech

That wasn’t clear...positive AMA, ALK PHOS & possibly bilirubin. Sorry

Aprilbalech profile image
Aprilbalech in reply to gwillistexas

Thank you so much. My liver had a mildly course texture and positive ama but no elevated enzymes except for while on antibiotics. It’s very puzzling and very scarey. No real diagnosis. I also tested positive for norovirus when this was going on. It’s a wait and see thing right now.

Sachin1234 profile image
Sachin1234 in reply to Dcgal

I’m referred dr James and I’m seeing him Wednesday 🤗 how does he approach?

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