PBC Foundation
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PBC and using Hot Springs to heal itch and scratch marks?

This feels like a stupid question, but I am told here, that there are none.

Does anyone know if you can soak excess bile salts from under your skin? For that matter have the doctors decided for sure bile salts build up under the skin.

I am asking because I have a mineral hot springs close to my home. Membership is expensive but would be worth it if there were health benefits to PBC.

I use cooling agents to help itching. But I hear several people like hot Epson salt baths. Just wondering what everyone thinks. If I decide to experiment based on feedback. I will be sure to post the pos. and the negs.

Kathy

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My heptologist explained that the itch is due to the bile not having anywhere to go, therefore it secrets through our pores. Not sure if that's what you're looking for or not. I say give it a shot, don't see how it could hurt anything.

Stay strong❣️

Shannon

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My doctor also told me it is the liver salt of the bile.

I using coarse salt in my bath.

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Shannon,

I am counting on your hep doc being right. And hoping sitting in 106 degree temp mineral springs can help sweat it out so to speak. In theory it sound like something that is relatively non invasive, The worst thing that could happen is I set off a bad bout of itching. I think it is worth it to risk it at least once.

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Where is this magical place?

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Just outside of Penrose Colorado in believe it or not a desert. I used to like to go when it was freezing outside and the water is so nice and warm. I got away from going and just thought it might be nice to return but was a little wary the heat might set off a bout of itching. Oh well, Guess I will find out.

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I used to work in estespark, Colorado when I was in university.. I used to go every summer down there..I love Colorado and I'm still trying to move there as well!

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Estes Park is beautiful. If you ever get to come out my way, just let me know and I will show you the sites.

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I will come next year. I have lot of friends around Denver and Estes park area..

do you have good hepatilosigt out there?

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Can you try it out before you sign up? I would give it a try first and see how you feel after before you pay. Now that you mentioned this I wonder how a sauna would do for the itch? I read somewhere that a lot of diseases could be healed with a good fever or sweat. It could be a bunch of crap but native Americans still use sweat lodges a lot....just a thought

-Pam

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Earth Mineral are very good for your body!

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That is what I am going to try to do. Spend a day and see what happens. How are you feeling?

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I'm feeling pretty good. I have an appointment withnthe hep. On Friday. I'm hoping to see my blood levels improve. Thanks for asking. Good luck with the hot springs. I really hope it helps.

Pam

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Has your doctor calculated a MELD score to inform you if you qualify to be placed on a liver transplant list?

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No. He has not. I don't think I'm sick enough. I have stage 3 fibrosis. What about you? Do you have a meld score?

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No, not yet. I see my doc in December and will ask then.

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I don't know for sure, but I was thinking we don't get a meld score until we get to the cirhosis stage. You're not that far yet, are you?

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I'm sceptical as the heat always makes my itching worse, but would be interested in knowing if it works. Good luck 🤞

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I will leave a post when I get brave enough to try it. I am like you. Heat aggravates the itch. I don't have it all the time but when I do it is of the intractable sort. I am hoping that the hot soaks might find a way to pull the bile salts out of my skin. Heck I tried so many things, might as well try this. :)

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Direct heat from the sun will be different then the natural warm water from earth..next time, when I come to Denver I'm definitely soaking myself for couple of days for sure 😁😁😁

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They have a really good one in Steamboat Springs. It's called Strawberry Hot Springs if you can get there. It's beautiful.

Pam

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Hi Pam,

I have been off line for a while have a lot of catching up to do. I am going to the PBC conference. Will be staying in the Hilton Hotel that the PBC foundation secured special rate for $109 for two people. I am looking for a room mate to share the rate if you are interested. I will stay the nights of May 17,18, and 19th checking out the 20th. I found great airfare rates on "One travel".

Let me know how you are doing.

God Bless!

Kathy

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