Last November at my Fibromyalgia appointment I asked to have some bloods done as I had been feeling very unwell (sudden weight loss, 17 lbs in a matter of weeks, severe nausea, dizzy spells, urine infection, extreme tiredness etc.) Results showed up 3 auto antibodies Ro52, Ro60 and L.A. I had to chase up my results through my doctor who wasn't familiar with antibodies so I consulted Dr Google (as you do) and found they were related to Lupus or Sjogren's Syndrome both of which I appeared to tick most of the boxes.
After a battle of wills with my doc I got him to refer me to a gastroenterologist who retested my antibodies and the one attached to my liver (wasn't aware they could take up residence lol) came back abnormal. In the meantime she referred me on to a liver specialist and a urologist. On my next visit with her I told her that a doctor had told me approx 8 years ago that I had pbc and that my reading was very high! However, upon my own doctor's return from holiday he laughed it off (the other doc had a drink problem si i put it dow to that). I was enraged, all that stress and giving up my red wine was for nothing or so it seemed. The gastro was shocked at this and her whole demeanour seemed to change where she could hardly look me in the eyes and practically rushed me out the door (this was in sharp contrast to my first visit with her).
Unhappy and feeling even more confused and in particular unsatisfied I marched back into her and said "woman to woman do you think this is pic and she looked at me gravely, pursed her lips and nodded her head slowly in the affirmative. She then said that she was speaking about 'My case' to a top liver specialist while she away to a conference. She went on to say that you usually only get one set of tests carried out but that she managed to get mine tested twice (presumably from this head huncho she met). She said both readings for pbc were very high.
To cut a rather long story short (apologies!) I received a letter from her saying I was symptomatic pbc but yhat my lft's have been relatively satisfactory lately (they have been raised in the pass numerous times) and that she has red flagged me (being seen now in 2 weeks as opposed to the original 79 weeks! I have dry mouth dry eyes, itching shins, extreme tiredness blah blah blah....
Does anyone know where or what these high readings come from eg is it those aforementioned auto antibodies?
Apologies for the long winded essay just thought some of you may not have received your Sunday papers yet lol