Lack of communications : my experience... - Pernicious Anaemi...

Pernicious Anaemia Society

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Lack of communications

Casasue profile image
6 Replies

my experience is absoultly terrible one min they say is OK next say its they have dates mixed up when its due the injection as my Gastroenterology has informed of his concerns uk gps are absolutely negligent over my weight loss appetite and other heath I should it each week for month for build up it states in my medical notes I have but not every 8 weeks then practise things its every 3 months they oblivious too fact I have white cell issues and still won't listen my expense gps won't listen due too costs gainning infections all time

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Casasue profile image
Casasue
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6 Replies
Jillymo profile image
Jillymo

Your not alone in regard to this issue many of us have experienced the same. The NHS is an absolute shambles. 🤬

Orchard33 profile image
Orchard33

The NHS is now in a terminal state. I was told yesterday that the wait time for a gastroscopy is 90 weeks. Where we go from here is anyone's guess.

Jillymo profile image
Jillymo in reply to Orchard33

I waited over a year for mine and it's now been 9wks of waiting for the biopsy results. What a joke.

I spotted a post on the cardiollogy site which said there was a 54wk wait to be seen. I class it as legalised murder.

The NHS might be terminal but so are many of it's patients !

Orchard33 profile image
Orchard33 in reply to Jillymo

So agree.

Nackapan profile image
Nackapan in reply to Jillymo

I'm hoping no news is good news .

Jillymo profile image
Jillymo in reply to Nackapan

I am not so sure about that the results of endoscopy didn't look too promising. Both my Dr and heamatologist have tried chasing the results due to my having APs.

But keep lets🤞crossed. 😘

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