I’ve been diagnosed with PA in 2012.
Well I’ve been on B-12 injections since then. For the past 7-8 months I’ve been in a lot of pain. I have pain throughout my body. It gets worse at night when I’m laying down. I can’t get up because the pain is very bad.
Has anyone felt like this?
Hi,
Just wondered how often you are getting B12 injections and if you might need them more often.
Hi. B12 injections once a week.
sorry haven’t been on in awhile. Been feeling really bad. My B12 injections are once a week
Yes!! Me! As soon as I lay down, my internal tremors/vibrating starts. I can get shooting pains in my legs. My hands and/or feet will throb and hurt so bad that it’s painful to walk or bend my fingers. It’s awful! I don’t understand it.
Sending you lots of hugs and wishes to feel better soon 🙏🏼🤗.
I feel the pain just like you. It hurts so much I could cry. My B12 injections are 1000 mg. Plus I take B12 pills also
Hi. Sorry I haven’t been on but I’ve been feeling really bad. Not wanting to do anything anymore. With everything going on my depression is taking over. I feel bad for you. The pain is really bad. I’ve gone to Dr appointments here and they just say to go to therapy. They say it’s arthritis then they say they don’t know. Just go to therapy. Im hoping to go back to the Mayo in December and hopefully they can figure out why I have so much pain. The pain has gotten worse. Good luck to you. I send you with get well wishes and prayers.
Do you think this pain is related to B12 deficiency - is it something you recognise from your initial symptoms ? It is hard to say what it could be really - maybe arthritis, possibly ?
Can you describe your pain ?
For instance, I had pain in my back at the base of my spine, and left-side hip/groin pain. This was one of the main symptoms that made me first go to see the doctor back in 2015. It prevented me from standing up straight. The effort it took to stand still made my legs shake. It felt as if I was leaning backwards and to the left side - meaning that the back pain was compression, the hip tension. To ease it, I'd lean forward and against something.
In the mornings, on the way to work, it was the bus-stop sign ! Failing that, I'd have to start walking (which didn't hurt, strangely). The longer I stood still, the harder it was to bear.
Although I was able to explain exactly what this pain felt like, the doctor could not find an explanation, not even on scanning. I was given physio, and was treated as though it was bursitis, because that is what the physiotherapist said it resembled most. This only gave some temporary relief, but I was grateful for that.
At night, it can be difficult to sleep as there is some pressure pain in joints from the weight of one limb resting on another - one leg or arm cannot rest on the other as it starts making hip/knee/shoulder joints ache.
A year later, B12 deficiency was found. I don't expect the doctors related one to the other, but I do. It has got much better than it was.
I was also found later to have osteoporosis of the spine- but was told that this would not cause me this pain. I try to help myself by walking a lot (no more clinging to bus stop signs) - and it has worked. My latest Dexascan showed that my osteoporosis was responding to that, plus treatment, and has now been downgraded to osteopenia.
So, I don't know if there is anything that strikes a chord with you in what I have described. You can see how difficult it is for doctors, as we are all so different, but definitely worth trying your GP. This has become more difficult recently, without face-to-face appointments, so it might be worth attempting to describe in more detail how you are feeling pain and where you are feeling it..... use us for practice, if you like !
1st migraines. Pain from my neck down. My shoulders and arms feel heavy and sharp shooting pain. My legs heavy but weak. My feet hurt like pins . I can’t get up at night without a walker to help me. Once I lay down it gets worse
Your pain sounds just like mine. I see my Dr at the Mayo in December so let’s see what they say.
I would let the doctor know how you are feeling anyway. December is still a long way off. Got my first Christmas charity catalogue in the post this morning, though !
Hi.
Well I really don’t know why I have so much pain. The doctors here just keep sending me to therapy. That doesn’t help at all. I’m hoping to get back to the Mayo in December and hopefully they can give me some answers.
Good luck to you and the yo stay positive
have you increased injection frequency?
I’ve tried everything. B12 injections plus pills.
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