Has anyone experienced hair loss? I’v... - Pernicious Anaemi...

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Has anyone experienced hair loss? I’ve been in injections for about 3 months now and I am experiencing hair loss.

kburrows profile image
13 Replies

I will be getting my hormone levels checked but in the meantime, Does anyone have suggestions on vitamins or products to use for female hair loss.

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kburrows
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Nackapan profile image
Nackapan

Have your iron snd ferritin levels checked Also yiur thyroid function

kburrows profile image
kburrows in reply to Nackapan

I am on iron pills but I will ask the Dr. to check my ferritin and thyroid. Thank you!

Nackapan profile image
Nackapan in reply to kburrows

Oh iron takes a while to build up in your body so hopefully transient

Showgem profile image
Showgem

I was losing a lot of hair and my hair went white quite quickly. My b12 was very low and I was also deficient in vit D, was your vit d tested?

This may be totally unconnected, but 2 female friends who had received the Pfizer jab recently are suffering a lot of hair loss?

pramela profile image
pramela

I've lost over half my hair including body hair and eyebrows since being diagnosed with pa. I knew this was happening when on holiday with a dark brown floor covered with hair every day. I could pull big strands out as my hair weakened and I put this down to pa not being picked up for over a year. It has not grown back and is still weak and on a windy day my head looks like a busted mattress from the broken ends.

Nackapan profile image
Nackapan

Ove tried slit of things on my scalp. Jojoba oil and olive oil seeming the mist nourishing fi me.

Peppermint shampoo with a drop of essential oil of peppermint goid too.

I'm using a medicated shampoo I between all of this.

Also had my hair cut short .

JanD236 profile image
JanD236

My hairs been thinning for years, certainly since I was diagnosed with PA.

My zinc level is at the bottom of the range, my thyroid is iffy and I’m post menopausal so any (or all these factors) could account for it.

I daren’t use minoxidil as my blood pressure is already low and that impacts negatively on another condition I have (glaucoma).

Cherylclaire profile image
CherylclaireForum Support

When at my worst, my hair could change often from frizzy flyaway cobwebby to hair-loss. I'd get the odd day when hair looked not too bad but thin, then the cycle would begin again.

I thought this was just another B12 symptom, but GP thought more likely to be folate or ferritin which were both low. After 3 months treatment for both, it improved. Now and again this problem returned and coincided with dropping folate and ferritin. It took two years to stabilise these at good levels but I think I'm there now finally.

Because this was occurring simultaneously with B12 injection treatment, it's hard to tell which was the culprit: b12/folate/ferritin. It does return occasionally but never as bad now- last time was 2 months ago.

Most seem to think ferritin should be above 60 ug/L to be sure of being symptom-free. My GP thinks so, my oral medicine consultant thought above 80 ug/L as I had angular cheilitis.

Some people with B12 deficiency suffering from premature greying and hair-loss have not only halted hair-loss, it has regrown... in the previous colour !

kburrows profile image
kburrows

What did you take to get the folate and ferritin levels up?

ForViolet profile image
ForViolet

I've suffered a huge hair loss this past week. About one month ago I began using Methylcobalamin injections. Within a week I had an attack of sciatica. Since B12 (cyanocobalamin) injections have helped with this condition in the past, I continued my injections (methyl B12). When my sciatica did not improve, I increased the injections.

I had associated the sciatica with an exercise class and only yesterday began to read up on possible problems for some people with the methyl form of B12.

Now, I have stopped the methyl B12 and am considering using cyanocobalamin which helped me in previous sciatica attacks.

Methylcobalamin works great for some people, but not for others. I want to thank people on this forum who wrote helpful comments about 6 years ago, which I found last night.

lynxis profile image
lynxis

Just to mention, this can also be a post-viral symptom. If you had COVID, that could cause it, too.

Phylenejo profile image
Phylenejo

Lots of protein plus collagen might help

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