Advice please : Can someone give me... - Pernicious Anaemi...

Pernicious Anaemia Society

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Advice please

Autumn11 profile image
6 Replies

Can someone give me some advice? I can't keep a job, I'm suffering I have 2 kids to take care of how does someone have income and have health problems? I've tried working part time I can't do it. I've tried applying for SSI, and was denied. Any advice is appreciated

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Autumn11 profile image
Autumn11
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6 Replies
wedgewood profile image
wedgewood

Have you reason to believe that you have Pernicious Anaemia / B12 deficiency ? That is the speciality here on this forum .If so we can definitely help you here . If not it might be more difficult. But there are many other forums .

We need to have more information about your symptoms , very best wishes to you and yoùr children . People on this forum are very helpful , but we need more information . Citizens Advice Bureau are great .

Autumn11 profile image
Autumn11 in reply towedgewood

Yes, I have every reason to believe that I do. I have a lot of symptoms, also when I take vitamin b12 I feel better but it's not enough. I have dizziness, fatigue, no appetite, short term memory loss, heart palpitations, shortness of breath, numbness in toes. My mom has schizophrenia, and dementia.

wedgewood profile image
wedgewood in reply toAutumn11

If you have Pernicious Anaemia , which is an incurable B12 deficiency , for which only injections of vitamin B12 will help . It is an autoimmune condition . Look up on google as much as you can . If you are taking oral supplements of B12 , it will skew your blood serum readings . P.A. can be difficult to diagnose because the test for it ( called Intrinsic Factor Anti Bodies test -IFAB ) - is notoriously inaccurate if it comes up negative . It can show negative even if you have P.A. in about 50% of negative results . In addition to that, P.A. is poorly understood by most of the medical profession . That’s why this society was formed . We try to help each other . So many of us have a struggle on our hands . I have diagnosed PA , but had terrible difficulty in getting the treatment I need . I had to take matters into my own hands , and self-inject weekly , instead of what my GP would give -1 injection every 3 months . You should definitely try to get treatment from your GP first. So I suggest you consult him/her . All the very best .

CW12 profile image
CW12

Speak to a doctor to evaluate you. If the doctor feels there is concrete evidence you can apply for disability

Gambit62 profile image
Gambit62Administrator

You may also want to contact citizen's advice to find out about any financial support that you may be entitled to and appealing against the original ruling on SSI. Many rulings do get overturned on appeal.

citizensadvice.org.uk/

They may also be able to help you with finding suitable employment/getting employers to take into account that you have health problems and structure the job accordingly.

Autumn11 profile image
Autumn11

Thank you for all your help everyone. All great advice. But I'm in the U.S.

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