Newly diagnosed when do you start to ... - Pernicious Anaemi...

Pernicious Anaemia Society
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Newly diagnosed when do you start to feel better?

RJGFiona
RJGFiona

Hi I have recently been diagnosed with low B12, they have said I will be on injections for the rest of my life which is fine if they make me feel better. My question is until a few months ago I exercised regularly a mixture of cardio and weights. However if I attempt to exercise now I get chest pain, palpations so is it possible to exercise or should I just do low impact stuff? Also when do you start to feel better as I feel so tired. Thankyou

8 Replies
oldestnewest

Every person is individual, in their experience. Please read my post of a few hours ago.

Depending on where you are today, it could be months. It’s slow so you will not notice anything like a switch being thrown. This is a great resource for seeing what others have experienced,

Don’t forget that there are many causes of B12 deficiency and each different cause will have its own ‘recovery’ cycle. Injections are not necessarily, in their own right, the solution to all ills. Many then take top ups, sub linguals, etc.

I don’t want to scare you but you must be realistic that this is rarely something you wake up from the next day, cured!

RJGFiona
RJGFiona
in reply to GGourmet

Hi, wow just read your post what a journey you have been on. I too have visual disturbances and the GP just told me to go to the opticians. It feels like they don't know alot about this potentially serious condition. I wish you well on your journey of recovery x

GGourmet
GGourmet
in reply to RJGFiona

Me too. Optician found nothing but I did get a prescription for glasses. Smiley face!

B12X
B12X
in reply to RJGFiona

I also have visual disturbances

????

clivealive
clivealiveForum Support

Hi RJGFiona have you had any B12 injections yet and at what frequency are you scheduled to have them?

Do you know what your Folate level is?

Have you been told the cause for your deficiency?

As for future exercises be guided by what your body is telling you but be aware that your energy levels may be reduced from what you are used to.

It is not uncommon for some symptoms to appear to get worse before they get better as the B12 you are having starts repairing the damage done to your nervous system and your brain starts getting multiple messages from part of the body it had "forgotten about" or lost contact with.

I sometimes liken it to a badly tuned radio on which you have turned the volume up high trying to catch the programme you want when all of a sudden the signal comes in loud and clear and the blast nearly deafens you.

A lot will depend on the severity and longevity of your B12 deficiency as to how long before there is no further improvement or recovery.

Some symptoms will "disappear" quite quickly whereas others may take months or even years. There is no set timescale as we are all different.

I am not a medically trained person but I've had Pernicious Anaemia (a form of B12 deficiency) for more than 46 years.

I wish you well.

RJGFiona
RJGFiona
in reply to clivealive

Thankyou for your reply, I have had 2 injections so far and another 4 to follow in the next few days, then every 12 weeks. I don't know about my folate level but will ask tomorrow. As far as I have been told my boss can no longer absorb B12 it's not dietary something to do with intrinsic something or other. As you can tell I have not been given alot of information! So I think like you suggest I will listen to my body and go at my own pace. 😁

Welcome to life of injections - all I can say is that there are a lot of factors that will impact how you feel after an injection - these could be having a cold, being busy etc. So your question about "when will I feel the benefits" - everyone is different. Sorry....

I have been told by my doctor that they are moving AWAY from shots because studies show supplements do a better job also get labs done. I take 500 mcg a day

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