I had my loading doses Feb/March and was in top form for six weeks (I'd forgotten what it was like to have a spring in my step!). Then it went downhill. I was back on the sofa at six weeks, all my symptoms had returned by eight weeks. At this point I went to the doctor in tears and was given short shrift. She did say I could have my next injection at 10 weeks, but by then the tingles had turned to pretty bad pains in my hands and feet. After the injection I felt mentally better and the palpitations had stopped, but the instant cure I was hoping for didn't materialise. I waited two weeks to see if there would be incremental improvement, but then the pains in my hands and feet got so bad that it was keeping me awake that I decided to self-inject.
I'd had the supplies for about a month but I was absolutely terrified of it. I'm just not the type of person that buys random drugs off the internet and injects them. I tried twice - the first time not realising about the dot on the ampule and having broken glass everywhere, the second time getting to having the needle ready and just staring at it for ten minutes then giving up.
Some of the website/videos about injecting had been talking about pulling back the syringe to check you weren't in a vein and that seemed very scary, but then I read an article which said that there weren't any major veins near the thigh muscle into which I would be injecting so this wasn't necessary which eased my mind a bit. Also, I watched a video of a surfer dude inject his girlfriend with a very cavalier attitude which made me think that if he could do it I could do it.
I managed to inject last Saturday and was pleasantly surprised to find out I did not die. The pains in my hands and feet disappeared overnight. I still have tingling and numbness and injected myself again yesterday (after another two bum attempts where I couldn't get the air bubble out of the syringe). I'm sure it will get easier over time.
My husband has private health insurance through his work so I'm waiting on them to approve a visit to a private haematologist in Edinburgh.