Today's funny... : I spoke with my GP... - Pernicious Anaemi...

Pernicious Anaemia Society

31,804 members22,934 posts

Today's funny...

Hercules1969 profile image
10 Replies

I spoke with my GP about my B12 today. She has been harping on that my level has only just dropped since January (337 down to 192) so I cannot possibly have any neuropathy. I reminded her that it was 217 a year ago. She then said they have dropped their threshold to 190 now....

Written by
Hercules1969 profile image
Hercules1969
To view profiles and participate in discussions please or .
Read more about...
10 Replies
clivealive profile image
clivealiveForum Support

You must be a "moving target" Hercules1969 :)

Frodo profile image
Frodo

Funny but terrifying.

Have I understood correctly - because they have decided to change the threshold for what constitutes deficiency, and you don't fit that, you are therefore not ill /don't have neuropathy even though you WERE ill before the threshold was altered?

Are we living in some crazy fictional dystopia?

Hercules1969 profile image
Hercules1969 in reply to Frodo

Pretty much. I am changing doctors. They utterly refuse to listen on B12. I am self administering sublingual anyway. I have had 11 diagnosis of fibromyalgia recently but I would not be surprised if b12 is still an issue within that. They have always seen my serum score as borderline. Many doctors do.

Highland49 profile image
Highland49 in reply to Hercules1969

Through a Facebook page, I hear of so many GPs being like this. Unfortunately, neurological symptoms can occur with results under 500 let alone your reading.

Sublingual tablets will not be as effective at repairing the nerve damage, you should have alternate day injections as per BNF/NICE guidelines otherwise you run the risk of permanent damage.

Have you considered self injecting?

Hercules1969 profile image
Hercules1969 in reply to Highland49

I cannot afford the injections. I have an £8 bottle of B compound from Holland & Barrett. I had to quit my job in February.

Highland49 profile image
Highland49 in reply to Hercules1969

Sorry to hear that, sounds like you're having as good a year as we are. The b12d charity have donations to cover starting people on injections. They also have lots more information on their site.

I now buy through versandapo in Germany and needles etc from Medisave. Injections work out less than £1 each.

I hope things improve for you.

Hercules1969 profile image
Hercules1969 in reply to Highland49

It's a thought.

KimberinUS profile image
KimberinUS

Gp's ignorance is scary and SUPER FRUSTRATING!

topazrat profile image
topazrat

Don't you just love moving goal posts! I was diagnosed with diabetes nearly 20 years ago. But I don't have it anymore, because the goal posts have been moved and I am now JUST under the threshold where treatment is given!

Hercules1969 profile image
Hercules1969 in reply to topazrat

Quelle Surprise. I am moving from that surgery. They treat numbers on screens rather than patients.

You may also like...

Funny results of having healed more.

asked a mechanic to take it for a test ride and he said there was a loud humming. Here is the...

At the haematologist appointment today

haematologist today and she said that doesn't think it is B12 deficiency as my levels are normal 233

Plz help GP thinks my forgetfulness is funny

distressed my injections end tomorrow but still have symptoms anger, tearful, forget everything,...

Given Pernicious Anaemia diagnosis today

Hi I have had a phone call today, telling me that I have this condition. I have to repeat the blood...

Diagnosed today told nothing

I have suffered with pins n needles in my hands n feet for 4 years I've been getting weaker over the