About a year ago I was diagnosed with pernicious anemia by my hematologist due to very high parietal cell antibodies and at the time had a b12 reading of 210. I only take B12 orally and have for the past year. Now he seems totally uninterested and not concerned since my level is now 700 but symptoms still remain. Currently my level is 700 and folate was normal at 14. IF negative. I take 2000mcg of B12 spray daily. No folic acid. In the past (and usually) my folate levels are high in the upper 20s despite not taking folate. My gastroenterologist says I may have Atrophic Gastrtis but diagnosis pending. I feel absolutely fatigued and my limbs feel weak (I would never be able to hold my arms above my head longer than 5 seconds). Most importantly since all of this started I have constant lightheadness and was diagnosed with epilepsy shortly after (any clue if it could be related?!)
What I'm wondering is how long would I have to stop take B12 to get an accurate reading? I feel when I stop taking it for just a few days areas of my face start to feel tingly near my cheek and upper lip. I feel my doctor won't do anything if I keep having normal levels of B12. I've asked repeatedly for injections but they refuse.
I'd love to hear your thoughts or advice. Thanks so much!