So I had a phone call with my doctor regarding the results of the B12 and C-reactive proteins. She said that "clinically it looks like you have enough B12", which I replied 'yes clinically'. (I had previously mentioned it was likely to be high). But I then mentioned the MMA test, which she said she would look to see where I could have this done and get back to me.
After nearly two weeks and having heard nothing, I was due to repeat the C-reactive protein test (this continues to be high and fluctuating between 24 and 32 for the last year). So I decided to print some more of the documents and give these in at the surgery for my doctor's attention. I included details of where the MMA test could be done, as well as BJH document stating that if neuro symptoms present then it should be every 8 weeks rather than 12, along with the document on sub-acute degeneration of the spinal cord.
Two days later, my doctor phoned to tell me she hadn't forgotten about me, and that she had found that I could have the Homocysteine and MMA test in Leicester which is fairly local to me, so that is being arranged for the next week or so. She has also spoken to a haematologist and decided that I can increase my injections to every 8 weeks, but said that the haematologist said he would not recommend them any more often than this.
I was in shock that I had managed to get the injections increased that I didn't ask why he would not recommend them any more often.... but I am happy at the moment with every 8 weeks. It usually hits me around week 5-6. so a bit less of a wait.
I mentioned whether I should try sublinguals or patches in between injections and she said she would not recommend this as she could not find them on the system, and did not know a lot about them (neither her nor the haematologist had heard of them).
On a plus note, she is looking to see if there are any specialists in B12 in the country (UK) that it might be worth me talking to. So if anyone knows of any, preferably around the midlands or in towns/cities easy to reach on the train from Leicester, then I would be happy to hear about them...
Thank you for all your support and links to documents. I feel like there is still a way to go, but not that I am fighting a losing battle any more. I now know why I have to wait an age to get an appointment with my doctor....