Hi, I've just started getting loading shots from my doctor. These were hard-won, for Trigeminal Neuralgia, a neurological complaint, which I managed to convince him might be B12 deficiency related. The Haematological Society recommends that you keep doing loading "until there is no further improvement" but with TN I'm not sure it's going to be feasible to do that. It's considered an incurable disease and I am fortunate to be getting this treatment - if the stories on here are anything to go by! - so I doubt if we will see measurable results that quickly.
The society recommends continuing loading shots for three weeks, if you are not sure what else to do, and then going onto bi-monthly shots, but I'm worried about stopping them too soon to see a difference and I can't see bi-monthly shots making much impression on such serious damage as TN.
My question is, after the loading period what should I bargain for? I think I can argue my case, because the doctor wants to believe in this treatment, but what would be appropriate for neurological damage? I thought perhaps once a week, if he would agree to it. Failing that, once a month. Anybody who has had neurological damage (I'm not expecting you to have had Trigeminal Neuralgia - it's rare - but any neurological damage would do) got suggestions as to what might be a good therapeutic dose to stick to? And how long I should be on it?
Any insights most gratefully received...