Newbee say hello and need advices - Parkinson's New Z...

Parkinson's New Zealand

1,030 members131 posts

Newbee say hello and need advices

babyromeo profile image
2 Replies

Hi everyone! I'm new here, I was diagnosed in 2009, and I'm living overseas so I have neurologist taking care of me. I contacted LCT global regarding NTCELL treatment, they said

the treatment should be available when provisional consent is obtained at end of 2017. I decided to try this treatment. As my neurologist is not in NZ. I believe he is not eligible to refer me to take this treatment. He even don't know anything about NTCELL. I can't get contact to my family doctor in NZ as I live in overseas for a long time. Any advices for my case? Btw, I need more friends in NZ, so we can chat and discuss more about PD stuff. I'm 49 years old male living in Hong Kong.

Written by
babyromeo profile image
babyromeo
To view profiles and participate in discussions please or .
2 Replies
whack-a-mole profile image
whack-a-mole

Maybe you should just participate in the upcoming trial(?). Here's the link to NTCELL study (currently seeking participants) with eligibility requirements:

clinicaltrials.gov/ct2/show...

babyromeo profile image
babyromeo in reply to whack-a-mole

Thanks for your reply. Unfortunately, I do not meet the criteria to participate in the trial. Btw, do I need a NZ neurologist refer me to take this treatment when it is available? Can I contact any neurologist directly without refer by family physician?

Not what you're looking for?

You may also like...

When and what to tell people about Parkinson's

My husband has just been diagnosed with PD at age 61. He's got a really good attitude - along the...

Any good exercise tips for parkinsons?

Hi there, My mother has parkinsons. She was diagnosed just about 5years ago now when she was 56....

Smaller

My world got smaller My handwriting My voice My walk My spirit My balance The space in the...

I'm newly-diagnosed with PD. I understand the need for exercise, and thought I'd try Tai Chi.

There are so many DVD's available online. I was wondering if anyone can recommend a particular...

I am experiencing extreme body fatigue and the feeling of heaviness most days. Has anyone got ideas on how to alleviate this fatigue.