Parkinson's New Zealand
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My world got smaller

My handwriting

My voice

My walk

My spirit

My balance

The space in the world I take up

It crept up on me - this slowness - did,

in micro increments (those are big words for small and slow)

until it arrived with a name

And then it became BIG

And scary

And I didn’t want it

But now I had a face

A reason for the smallness

And so it became what it is

I may be smaller, slower

But I’m still me

Andy McDowell May 2010

(diagnosed with Parkinsons aged 44)

With thanks to Jeanette Gillibrand (ADHB)

12 Replies

This is poignant, beautifully expressed and so true!

Small is still precious


Thank you :-)


I like this poem, glad you shared it. :-)

Big things often have small beginnings.....


Perfectly put!


Thanks Andy


I like it too....Cheers !


I read this poem in the February paper copy of Upbeat. I haven't been able to put into words just how I've been feeling since I was diagnosed with Parkinsons in July last year. This poem pefectly expressed the way I feel and touched me deeply. Thank you so much.


Thanks Daisy.. I just read your post, and it reminded that I hadn't acknowledged your appreciation. Bless you.


PS I have this poem illustrated and made into a small booklet pdf. If anyone wants it, please let me know.


I would really like a pdf copy of your illustrated poem Andy. I'm not 100% computer savvy......actually not even 50%, so could you please let me know how to go about this. Thank you : )


email me :


i sometoiimes think of pd as my own private nanoverse


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