RAISING AWARENESS , WONT CURE PARKINSONS SHOULD TREATENTS BE OFFERED TO THOSE WILLING TO TAKE A CHANCE

[professor]

NEW DRUGS TAKE >7 YEARS,BEFORE APPROVAL, CELL/ NEURO GRAFTS,THATCOULD HELP ,SHOULD THESE BE AVAILABLE, TO THOSE WILLING TO TAKE A CHANCE,OR DO WE KEEP FUNDING, RESEARCH HOLIDAY CAMP

[Hidden]

I agree september of 2011 I had surgery in Boston Mass. General using gene therapy GAD . If this doesn't work I would do it again the I want to try is the one in the UK .

[Jash]

I agree; at least give us the opportunity to take the risk--doing nothing is a greater risk.

[Kat00]

I would like to point out that although raising awareness will not find a cure directly, it takes huge amounts of money to fund research and fast track drugs and treatments through trials to make them available. This funding can not come from those affected with Parkinsons alone. The more the public is educated about how devastating and fatal PD can be, the more people will contribute funds. In turn these funds allow cutting edge treatments to be made available to those willing to try them.

[professor in reply to Kat00]

yes research costs,BUT FUND MANAGEMENT, NEEDS,BETTER ORGANISED

they dont HAVE A PLAN to focus research to find a cure

research like E.G. studying which colour toilet roll parky patients prefer

the public are bled dry giviing to charity,remembering funds go to pay researchers saleries,WHETHER THEY GET A RESULT OR NOT hence, RESEARCH HOLIDAY CAMP

NO JIST GET A TEFALHEAD TO GET US A GOD DAMN CURE

everyman and his dog iis reseaching,,WHO IS KIDDIN WHO?/

[Joyable in reply to professor]

Sadly, you have a point

[larry33b]

Absofuckinlutely!

[WayneP]

Ya think I am crazy but I am telling you if all of Congress woke up this morning with PD, you would see some radical things happen to find a cure fast.

[Joyable]

I think PD funding for research should be used for both developing medications/treatments and for finding a cure. Existing Parkies are in need of medications/treatments NOW. Yet, finding a cure as soon as possible is also important, if not for us, for future generations of Parkies.

Fortunately, there is an overlap between research for medication/treatments & research for a cure. Research for a cure could result in the discovery of an effective medication/treatment. While researching for effective medication/treatments, a cure could be found.

Funding of public awareness activities is a means of getting a share of medical research donations that now tend to be given to the most familiar causes such as cancer & muscular dystrophy (MD). I believe that public awareness of young Onset PD & the array of PD symptoms would certainly result in a huge increase in donations for PD research. Now, most people think of PD as a condition elderly people get and associate PD with shaking only.

Substantial increases in available PD funding would make it possible to fund efforts to remove barriers to the expediency with which a new medication/treatment becomes available for use.

[Kat00]

Joyable...I agree with you 100%

[Joyable]

There is now a new trial finder feature at michaeljfox.org. You could check there on the home research page to see if you want to apply for any of the numerous trials listed.