The invisible illness :: forget the tremors and funny foot, for me this real disease

I am sure I have spoken about this many many times but it flooded my head again today so here's a recap. I manage with the lack ofco-ordination, stiffness, pain, incontinence, the catatonic foot and all the rest of the 'body' type stuff. What annoys me the most is...

Loosing words mid sentence

Not being able to concentrate enough to read a book

Not being able to spell

Talking gobbledygook and then 're-engaging' knowing I did

Suddenly falling asleep for a few seconds

Being catastrophically untidy

Worrying about what people think

Driving to Tesco feeling overwhelmed and driving out

Making it into Tesco, looking at all the products on the shelves feeling overwhelmed and walking out

Making it to the Tesco check out getting home and discovering I bought nothing we needed

Getting over anxious if my to-do list has more than one thing on it

Turning into an incompetent ninny at airports

BUT

there's marmite, haribo, hugs, music, cherries, a sunrise, the noise of the sea, picnic's, friends, dancing in the rain, the smell of a new puppy, painting, drums (of course) wearing a tutu ......

Don't let it get to you, don't let it rub out who you are, keep filling life in again....

Just say NO! it won't, it can't, I'm not letting it!

xxx

6 Replies

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  • What an inspirational blog! Thank you x

  • thank you

  • Hey there H-H,

    I've taken the liberty of editing your blog & adapting it to suit my own condition.

    I manage with the lack of co-ordination, stiffness, pain, the catatonic foot and all the rest of the 'body' type stuff. What annoys me the most is...

    Loosing words mid sentence

    Not being able to concentrate enough to read a book

    Talking gobbledygook and then 're-engaging' knowing I did

    Being catastrophically untidy

    Driving to Tesco feeling overwhelmed and driving out

    Making it to the Tesco check out getting home and discovering I bought nothing we needed

    Getting over anxious if my to-do list has more than one thing on it

    My take on it:

    I usually introduce myself as having PD & giving a brief explanation of how it might affect our interaction

    I NEVER apologise for having PD

    I NEVER feel embarassed about having PD - I've explained at intro

    I NEVER let pass comments from others wich are rude, patronising or ignorant re PD whether addressed to me or others with me.

    On the whole people are receptive, caring & polite, not just about PD. I find that when people behave out of this mould it is generally because they are AFRAID.

    This makes them uncomfortable & awkward.

    You know you just have to feel sorry for them.....

    Hugs & commiserations,

    Angela

  • Angela,

    You "hit the nail on the head", thank you!

  • AMEN!

  • If Tesco is like a supermarket, forget it. I'm shopping online from now on. Crowds make me nuts . Don't know why I live in NYC. I hear ya, H-H, communication was always difficult. Now it's overwhelming! I can read a book, and have to laugh, because I will be 3/4 through and realize, I've read it before!

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