Stalevo: Hi all. My neurologist has changed... - Cure Parkinson's

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Stalevo

15 Replies

Hi all. My neurologist has changed my Madopar (3/4 tablet 5 times per day, 4 hourly) to Stalevo, 1 tablet qid. Since the switch I have been struggling and feel I need an extra tablet. Does anyone have experience in Stalevo? Would you mind letting me know the dosage you are following and how helpful it is? Thanks Veronique

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15 Replies
johntPM profile image
johntPM

What are the dose sizes?

In theory, looking at the levodopa component, 100 mg of Stalevo should be worth 133 mg of Madopar.

in reply to johntPM

I am on 50mg to be increased to 100mg still qid. I am unsure how often to take. Pharmacist suggested breakfast, lunch, dinner and supper. I am worried the frequency may be too long.

park_bear profile image
park_bear

The fact that you had been properly medicated and are now under medicated is all you need to know. Go back to the neurologist and tell him or her this is the case. Not fixing what is not broken is a good general principle.

in reply to park_bear

Thanks park_bear. He called today and increased Stalevo to 100. Hoping this works better as yesterday I couldn't move.

Astra7 profile image
Astra7

Why did you change?

in reply to Astra7

Madopar only covered me for 3 hours and my neurologist thought Stalevo would give longer lasting dosage

in reply to

The extra component in Stalevo, entacapone, is meant to reduce off periods. I have used it for many years but asked to be put on Sastravi, a cheaper generic, to decrease the cost to the NHS. I experienced no difference with that change.

Geauxgirl45 profile image
Geauxgirl45

My husband takes generic Stevalo 200mg 6 times a day. He also takes Sinemet 1/2 25/100 tab up to three times a day. He has DBS. Some days he has a lot of off time still! He has had Parkinson's for 34 years

Annifinn profile image
Annifinn

I have had Parkinson’s 38 years. well controlled until the last couple of years, but found I was overdosing on ropinirole. Since altering my regime three years ago my physical symptoms are less controlled but mentally better. I now take a cocktail of ammantadine, sinemet, lower dose ropinirole,artane plus paroxitine for depression. Any advice or ideas would be welcome!

jeeves19 profile image
jeeves19 in reply to Annifinn

38 years! Amazing.

Astra7 profile image
Astra7 in reply to Annifinn

That’s amazing. How long have you taken meds? I see you are a big mannitol fan. Any side effects??

Panda30 profile image
Panda30

I had the similar experience when my neurologist changed to Stalevo. I took for month or so and changed to Kinson.

It was effective for very short time only. Then as if the tape is cut half way through. I know what you mean..

in reply to Panda30

Hopefully the increase in dosage might help.

Ireneno profile image
Ireneno

I take Stalevo every 4 hrs ... works well

in reply to Ireneno

Glad to hear! What times do you usually take the last tablet?

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