Parkinson's Movement
13,779 members12,333 posts

Smile

Hey !!! Parkinson's disease is reversible don't panic I have it since 5 years I refused medicine i exercise free sugar diet free lectins massage yoga cardio exercises in water laughter therapy and very optimistic change your life and you will see how beautiful is everything Good luck

73 Replies
oldestnewest

I'm doing well enjoying my life now more day by day and nobody believes that I have Parkinson's until I show them my brain MRI diagnostic

Reply

Reply

Parkinson’s doesn’t show up on an MRI

1 like
Reply

Optimism is a wonderful thing but many people are really struggling with this dreadful illness and telling them it's reversible is a little hurtful. It's very different for everyone and if you are symptom free you are very lucky.

14 likes
Reply

I challenged the disease

1 like
Reply

You challenged Parky and you won, well done Aida. You must have so much will power and resolve. You were and still are very brave to not take the medicine. I wish I hadn't now. I am in my 18th year now and still play football every week. I played for an hour n searing heat this week. I walk a mile there and shuffle a mile back. Today, I couldn't be bothered to go to the local shop,

2 likes
Reply

You can always start again shadesofnothing

2 likes
Reply

2 likes
Reply

Aida

Thanks for sharing the video.

Kia

3 likes
Reply

Here another one I'm so happy for Collin

2 likes
Reply

Reply

Yes, I could, anyone could if they had the correct attitude and mind set; it all about using stored brain power .... realizing our inner spiritual reserves, our untapped special energies. So if I am even just a bit right why can't I practice what I preach?

Thanks for the link, but I watched it last year; I enjoyed it and was moved by Colin and the pretty doc, Lol ;)

3 likes
Reply

Wow! Playing football every week! My hats off to you! My balance is so bad, I can't even walk a straight line, let alone try to walk or run, without having trouble! Count your blessings, if you can still exercise like that!

1 like
Reply

Try to jump with the rope start slowly slowly every day you add a minute... it's so good

1 like
Reply

Parkinson's isn't reversible so far. But some of the symptoms are. For a period of time.

2 likes
Reply

I don't agree with you

3 likes
Reply

Luckily science isnt determined by beliefs but what’s testable. You can believe whatever you want. But science says you and your beliefs are WRONG. I believe one day PD will be reversed. But the therapy breakthroughs won’t be by you but by actual scientists using the most rigorous standards and testing.

1 like
Reply

I absolutely agree telling people it is reverseable is stupid and arrogant we all fight in our own way life is a battle I am sure we will all stay positive what we don't need is some crank telling you it's can be reversed Michael j fox has been trying for 30 years

6 likes
Reply

Can you explain your "brain diagnostic MRI" for us ??

4 likes
Reply

My doctor suggested a specific single-photon emission computerized tomography SPECT scan called a dopa mine transporter (DAT) scan. Although this helped support the suspicion that i I have Parkinson's disease

1 like
Reply

Yes, many of us thought that in the beginning stages, of Parkinson's! Perhaps you have found the secret to help you, and that's a good thing. I hope you never have any more progression of PD, and that is a sincere hope! One has to really understand the pathobiological process of neuro-degeneration, concerning alph-synnuclein, lewy body deposits, and the workings of the substantia nigra area of brain anatomy, to grasp the far-reaching effects of damage, within the brain's neuronal system, regarding Parkinson's. Actually, there are many investigators/scientists, who believe the diagnosis of Parkinson's includes a multi-faceted disease process, that, perhaps, could be divided up into a number of disease categories ( such as Parkinson's, Parkinson's Disease, Parkinson's Syndrome, Parkinson's Plus ). Therefore, as a result, many people diagnosed with PD, have many varying types of symptoms, signs, and difficulties. Much of this, individually, is dependent upon the diffuse spread of neuro-degeneration within the nervous system. Some people seem to have minor symptoms and disability is subtle, or there may not be any disability. This can go on for a long time. Seemingly, there is no set timetable. My minor symptoms went on for about 5 years, and I functioned fairly normally, not realizing, until later, retrospectively, that I actually had PD symptoms. Then I had another 5 years of gradually worsening symptoms, where neuro-degeneration was becoming apparent. After a for sure diagnosis, with signs and symptoms readily apparent, I have been treated with Sinemet, and are continually being tested and treated as time goes on. I've had three specialists tell me that I have PD. I've had this for about 13 years now, and I have progressed to the point where most of my bodily systems are affected by PD, to an extent. I call the first 5 years, my honeymoon years with PD, when I thought, at times, whatever it was, that I had, was getting better. Some people are very lucky, in that they can lead full and productive lives, for years, without any PD progression! Perhaps the neuro-degeneration has subsided with some of these people. That is great! Why some are spared progression and others not, it's for the scientists and Doctor's to figure out, I guess. I don't have a clue. I just have to deal with each day as it comes, and one thing I know, is that I will continually fight to keep myself as functional as I can be, under the circumstances. I exercise, and try to be fkexible, and have a good nutrition plan. I participate in research studies and keep up on the latest info. on how to help myself. It helps to have a good support network, such as this blog, too! May the odds always remain in your favor!

8 likes
Reply

Neuroplasticity and neurone repair are both real phenomena even in the in the midbrain. The various routes to this are discussed all over this forum. The “standard story” of cell death just doesn’t hold up any more

5 likes
Reply

This is true, and neuroplasticity is a subject I've studied up on. It is my hope that I will be able to benefit from some of these discoveries, such as neuronal repair, and neuroplasticity, as I go through the clinical trials, that I am participating in. Thank you for your encouraging reply!

3 likes
Reply

Very nice post !!

1 like
Reply

What an absolutely brilliant summary especially for the newcomer to the disease; I am going to urge a friend of mine who has just learned he has PD to read it. I thank you so much ddmagee1. :)

Reply

Lucky you

2 likes
Reply

If you have Parkinson's disease try to challenge the symptoms by diet and exercising you will win and become lucky too

3 likes
Reply

People challenge the disease by good old fashioned fight and positive attitude I cycle 140 miles per week amongst other things I think if you had reversed your symptoms you would be a very rich man

5 likes
Reply

The "honeymoon period" of PD is well documented. It lasts about five years. I remember that during this initial period, I thought, "This isn't so bad, I can handle this." But shortly after the five year mark, the symptoms began to raise their ugly heads with full force, and the real experience of PD became evident. Yes, you can stave it off somewhat with diet and exercise, and everyone is different, so maybe you are one of the lucky ones. Write back to us in three years and let us know how you are doing then.

3 likes
Reply

Indeed yes

2 likes
Reply

What diet are you following ?

Reply

The paradox diet plan sugar free lectins free

2 likes
Reply

Aida63, I am happy for you...I haven't heard of lectins related to PD. Can you share ... did you find research on a connection? also when you say sugar free do you just mean processed sugar or do you mean no fruit and carbs also. Tnks!

2 likes
Reply

sorry ... i now see your reply referred to a specific diet plan ... will check it out...tnks

Reply
Reply

It is now 11 years since diagnosis. All the time I have fought against Parkinson’s. What has helped a lot with balance issues is Taichi. Then I must remember I cannot do two things at the same time any more for sample walking and talking at the same time can lead to nasty trip ups. Before too long a video of my song “ please give me time and space” Will be available on YouTube!

4 likes
Reply

Will keep a watch out for your video on You Tube! Suffering Socks

1 like
Reply

BS

1 like
Reply

To whom are you replying ?

Reply

Sorry 😐 wrong person

1 like
Reply

I don't know why people continue to think that what works for them will work for other people. This is such a differentiated disease. Let's not insult each other with that assumption. There is also the matter that Parkinson's can't really be proved with any technique except an autopsy.

7 likes
Reply

I agree

1 like
Reply

No martter Aida63 is right or wrong,I am wondering why do some of this forum users are offended by a post that simply describes a PD patient personal experience. We have seen many people in the forum with a very negative attitude towards the PD.

Aida63 looking at the PD differently. Is that offensive?

Please respect each other views.

I wish Aida and all other dear users with a very best of luck.

Thank you

Kia

13 likes
Reply

Thank you Kia17

4 likes
Reply

Oh, praise be to people like Kia17 :)

4 likes
Reply

Because they’re wrong. It’s not disrespectful to point out anecdotal evidence nor the obvious erroneous usage of the word “reversible.” The discovery for reversing Parkinson’s will not be made by a random non-scientist. And I’ll take all and every wagers on that.

1 like
Reply

Strange, however, that with all the funds spent there has not yet been progress and we are practically stuck at lDopa after 50 years. Are we sure that there is this intention on the part of those who say that they assume this responsibility as scientists?

4 likes
Reply

I think we were stuck with generalized medicine, which is exactly what modern pharmacology is (think generic brands and patent wars). At the personal, individual cellular level—that is where I’d place my bets. And that can’t be patented unless genetics are patented— which would be akin to slavery (having you genes owned). I’m not saying this person isn’t experiencing benefits. What I’m saying is that treatment for diseases—especially ones today we deem incurable—will alter drastically rather soon, because a.) disease or syndromes are being understood phenotypically, with more and more subdivisions b.) treatment is being taken to the cellular replacement level and c.) knowledge is widespread throughout many industries. I think you’re right about funding however. Funding, in a society founded on money, will remain a barrier to accelerating the timeframe for when certain diseases can be eradicated or at the very least therapies to vastly improve quality of life. : )

Reply

If what you say is true because today we do not even have a sure "marker" to measure and diagnose PD? It would be essential to determine if a search produces results, but we are still tied to the dat scan and to the UPDRS test to measure gains or worsening, a little bit do not you think? Now from here I can understand if we go in one direction or anywhere. I can not intellectually accept this, that is "We are science and only we have the answers and the responsibility to find them" and then do not go in that direction at all. I have nothing against science, but sometimes those who deal with it, do it with other purposes, this is treason.

3 likes
Reply

That’s a good question. I’m not saying PD will have a cure from a marker. But therapies will evolve beyond broad spectrum pharmacology. To the point of diets, I think this, too, can and will be individualized at some point, since our food is similarly generalized in its production as if humans were genetically invariable. Often we don’t think about food or medication through the lens of production. Overfarming alone accounts for a great deal of nutrient deficiency in soil and agriculture. Synthetic foods. Synthetic meds. They have a common denominator: production for profit. Science doesn’t claim to have all the answers, just the best method at arriving at practical and observable solutions, with the added benefit of self-correction. Diet ideologues don’t want to hear this because they want diet to replace broad based medication. But I just don’t see it going in that direction. It ignores the trend in science to individuate disease and patient treatment. Same as where I think food production might go: based solely on the make up of the individual. I admit I could be wrong. I also don’t mean to be confrontational. I’m just very interested in disease through the framework of production and the laboratory of that society. Cheers,

T

1 like
Reply

Sorry Ted but just a few hours ago you saw: “Luckily science isnt determined by beliefs but what's testable. You can believe whatever you want. But science says you and your beliefs are WRONG. I believe one day PD will be reversed. But the therapy breakthroughs won't be by you but by actual scientists using the most rigorous standards and testing.”. and we do not have a valid marker for PD? if we had one this discussion and many others would not take place because, as you rightly say: science is not determined by beliefs but what's testable, and I could not do anything but give you reason and I would do it willingly, but it's not there.:-)

3 likes
Reply

Hi GioCas, I"m not so knowledgeable as you or any of our multi pardoners in rhyme (good that, I thought, lol) I feel this is such a searching and intriguing topic of discussion that I've now forgotten what I was about to ask, lol. Oh wait ... I remember, this was it.

What do you think will come first - a cure for Parkinsons or a prevention? Or do you think they will be so related they will arrive almost simultaneously?

Reply

Ah Ah! 😂I really only think about how to save myself and others from PD and all other neurodegenerative diseases. 😂 Gio

Reply

Very interesting analytical information, concerning production and nutrient deficiency, in relationship to disease processes. I have pondered this subject before, and it seems like it is worth pursuing further, considering that "overfarming" has become the norm, rather than the exception.

Reply

There are scientists on this forum. Psychologists as well. The right attitude towards symptoms is a common theme amongst contributors. Science is beginning to use AI. This forum is input to this process

3 likes
Reply

The Paradox diet makes sense, I think if there would be a natural therapeutic protocol for reversing Parkinson's, this diet would be one of the items on it.

3 likes
Reply

hi Aida

One can be happy with the PD?

Why not if it is not an unsurpassable barrier to our goals!

If someone has no more hope, I'm sorry for him, but my door remains open to all those who have an experience to tell.

Smile :-)

Gio

7 likes
Reply

There's always hope we're there's fight

4 likes
Reply

I agree, Gio.

PD is a very tough disease that can have many different symptoms and it is sometimes easy to forget that some people are at more advanced stages of disease progression and may only be able to move about with a walker, cane or wheel chair in which case high energy exercise may not be an option for them. With others, severe depression may be an issue in which just getting out of bed may be a job in itself. Others who develop PD related dementia may become incapable of even remembering how to exercise. This disease covers such a broad range of symptoms, many of which can be overwhelming, making rational thought very difficult or impossible at times.

Hearing what works for others can be quite useful for some and may offer much needed hope for others at a time that they may be feeling hopeless! Many useful ideas are posted on this forum regularly and I think that is very good because again, it offers hope and in some cases, other members are able to derive benefit from the presented idea. Remembering that everyone who has PD is not at exactly the same stage of disease progression or state of mind will go a long way in making sure this forum is a place that PWPs want to come back to again and again! :-) 👍👍 :-)

Art

14 likes
Reply

That explains it perfectly, in my opinion. Thank you, easilly. :)

8 likes
Reply

Easily, good way of explaining how PD can be so different for so many people, yet we want this forum to continue to be a place that PWP want to come back to again and again.

5 likes
Reply

Several research groups are looking at / trialling Type 2 diabetes drugs (e.g. Exenatide at UCLH) with some success - so far. A number of scientists describe PD as insulin resistance in the brain. There would seem to be some sense in following diets that have been shown to stop and even reverse Type 2 diabetes. Cutting out sugar and most carbs (especially processed ones) will deliver other health benefits, regardless. Several studies have shown the positive effects of exercise. A healthy diet and exercise is surely a prudent step.

5 likes
Reply

Dear Aida63,

This is very good to hear, thank you for sharing your experience. I think learning about the correct diet is very important for Parkinson’s patients, may I ask you to elaborate on your diet and supplements (if any).

Thank you

Paul

3 likes
Reply

Hi Paul yes the diet is the paradox plan diet lectins free the supplements NADH Ltyrosine mucuna pruriens 5HTP LTryptophen Alpha lipoic acid NAC VItamin D3 Turmeric Vitamin E MSM plus magnesium (B complex Potassium and Zinc each 3 months with a pause

1 like
Reply

Aida,

Is there a specific plant paradox plan targeted to PD? Or is it dealing most prominently with inflamation?

Natasha

1 like
Reply

Exactly it's about to avoid certain veggies fruits nuts and all grains legumes to get rid of the inflammation

Reply

Thnx🌻

Reply

Aida -

Do you think all cases of PD are reversible, and in theory how does what you are doing reverse your PD symptoms?

2 likes
Reply

I can't assume but I can speak about my experience I had hard days I couldn't even take a shower by myself my husband did everything to me I was shuffling freeze when I talk to people and through my husband and my children encouragement I could go to the gym and the swimming pool to work out with my reading I couldn't discover a way how to fixe it so I can say yes it's reversible

Reply

My experience has been similar ...but not everyone is ready to believe that, so you may here some skeptics who really do not agree..but exercise takes work...and so does a very positive attitude...

1 like
Reply

My best exercise is jumping with the rope

Reply

When one says reversible, one means the symptoms do not have to get worse in all respects, some aspects may go into remission for a while, I get the message but not everyone will...they see this as a black and white statement..it is not: but the fight is what counts and how you intend to keep the capacity you have and where you improve it..or you can give up and get worse..that is the choice...(my advice: avoid those who give up, who want to scare the crap out of you and who say drugs are the only way to get better and no amount of exercise or capacity building will help: wrong)

4 likes
Reply

Well said, Jogger - good man, or woman, lol. :)

1 like
Reply

You may also like...